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  Tourettes Syndrome: Causes & Treatments
« on: July 08, 2006, 10:30:40 AM » by floydian
We have a friend that has severe Tourettes syndrome.  At least it seems so to us, I don't know much about this disease/syndrome (?).  His wife asked me to research it for her since she has no internet access.  The web sites I have found all seem to be professional health sites and have all the professional medical answers.  I would tend to think that many of the symptoms are diet related and could be controlled by diet, but have NO experience. 
I also wonder with this particular man if there are spiritual issues as well.  It's sort of a weird situation.  Again, I know nothing about this and welcome ANY help.  So would his wife.
Thanks yall.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #1 on: July 08, 2006, 11:42:34 AM » by healthybratt

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There is some research to support the fact that Tourette's is an another autoimmune disorder.    Researchers are finding more and more evidence that autoimmune disorders like Tourette's, arthritis, lupus, IBS, Chron's, etc are a result of many factors which are all related to diet and drugs.  With the low-fat diet craze, people are not getting enough of the essential fatty acids in their diets and when they do cheat, they are eating the bad fats, not the good ones.  People are also overdosing on antibiotics and pain killers which all disrupt the natural intestinal flora which protects us from Candida overgrowth, salmonella, e. coli, and even our own immune system.  Our immune system is pretty vicious on a cellular level.  Antibodies are little mercenaries designed to hunt down and destroy foreign invaders.  When we take too many antibiotics and pain killers, we leave ourselves open for all these foreign invaders to set up shop and then our immune system comes to the rescue.  When the essential fats are taken out of the diet, the part of the immune system which keeps these little killers in check stops working properly and our antibodies start attacking friendly cells.   

Regulating diet and meds is essential to keeping the body working properly and keeping the immune system in working order.

Here's another article on Candida and Tourettes.  The effects of yeast overgrowth and Autism, ADD, ADHD, Tourette's, headaches, fatigue, depression and schizophrenia

I would also recommend you read more on Leaky Gut Syndrome.  This is the condition which results from candidiasis and is another major contributor if not cause of autoimmune disfunction.


« Last Edit: July 08, 2006, 11:44:15 AM by healthybratt »
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #2 on: July 09, 2006, 11:46:26 AM » by floydian
Thanks, I will pass the links on to her.  I didn't think to type in both tourettes and leaky gut/Candidas in the same search.  Since, I have found several other sources. 
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #3 on: July 09, 2006, 12:25:12 PM » by healthybratt

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Thanks, I will pass the links on to her.  I didn't think to type in both tourettes and leaky gut/Candidas in the same search.  Since, I have found several other sources. 


After all the research I've done, that's the first thing I check.  Wink  I also use "autoimmune" or "autoimmunity" in most of my primary searches.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #4 on: July 09, 2006, 01:28:06 PM » by floydian
From everything I have read on here, it's probably the first place I should look on everything!!
Thanks!!!
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #5 on: February 29, 2008, 10:36:08 AM » by khix
(not sure if I'm posting this in the right category)

I wanted to start a thread devoted to Tourette's.  I saw it mentioned on WTM here & there, but no specific thread.  Anyway, back when my 10yo dd was around 7, she started with a vocal tic (throat clearing) and a motor tic (strange eye movement).  After much research, I thought it might be Tourette's.  She was seen by a pediatric neurologist.  He went ahead & diagnosed her with Tourette's, gave her a prescription, but since her tics were mild, I never filled it.  Also, we worked on the tics, and she was able to stop them over the summer.  I think maybe they were stress-induced (from school).  Well, also since she was around 7, she started with migraines.  Only about once every 3 or 4 months or so.  Now, they are very frequent.  I have also noticed that now sometimes she does another motor tic (moves her head to one side).  I'm really thinking it's stress-induced.  Anyway, it just dawned on me that tics & migraines are very much related.  I've been trying to find the cause of her migraines, but no luck so far.  I think the migraines are related to the tics.  I'm wondering if this is a nervous system disorder, or if it has to do with her diet, or if it was brought on by medications/vaccinations or a virus (she was sick just prior to the throat clearing that started at age 7, she had a sore throat - maybe it was strep?), or if it's just stress.  Anyway, I'm looking for help & answers.  We might be visiting another neurologist soon, if we can find one that takes medicaid.  And I'm worried about the kind of help/info I'll get there - you know, strong medication with nasty side effects.  (it's not like she's getting migraines & tics because her body is low on a certain medication).  I want to be armed with good information.  I want to find possible causes, and natural/healthy treatments.  Anyone else out there that has experience with Tourette Syndrome and/or migraines?  What were the causes?  The symptoms?  The treatment/cures? 
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #6 on: February 29, 2008, 10:45:16 AM » by healthyinOhio
You probably already read this following thread, but there was some good info on tourettes:
http://www.welltellme.com/discuss/index.php/topic,1428.0.html

« Last Edit: February 29, 2008, 04:27:16 PM by healthybratt »
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #7 on: March 05, 2008, 01:42:49 PM » by khix
Has no one on here had any personal experiences with Tourette's?  It would be nice to know what what treatments (hopefully natural ones!) worked and what didn't work.  Anyone?
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #8 on: August 04, 2008, 06:33:50 PM » by healthyinOhio
My daughter definitely has Tourettes, because she has had vocal tics and facial tics for over a year, which is the prognosis of the doctor's for Tourettes.  I have tried some fish oil this week and have noticed that it has made them more frequent??  I wonder why?  Anyone have a clue?
I am going to try this on my daughter to see if it would calm her down a bit:
http://www.theherbsplace.com/Stress_J_Liquid_2_fl._oz._p_300.html
And if it works, I will probably make a tincture of it, myself.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #9 on: August 04, 2008, 07:36:57 PM » by ladyhen
My daughter definitely has Tourettes, because she has had vocal tics and facial tics for over a year, which is the prognosis of the doctor's for Tourettes.  I have tried some fish oil this week and have noticed that it has made them more frequent??  I wonder why?  Anyone have a clue?
I am going to try this on my daughter to see if it would calm her down a bit:
http://www.theherbsplace.com/Stress_J_Liquid_2_fl._oz._p_300.html
And if it works, I will probably make a tincture of it, myself.

Not a clue on the reaction to the fish oil -- but I read the info on the link to the stress J.   Sounds like it could have a positive effect.  Maybe a tea of chamomile and marshmallow right away, considering the information that you posted on the 'diagnose me' thread.   
I'll keep the Tourettes in mind during my reading and post here if I run across anything.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #10 on: August 04, 2008, 09:33:34 PM » by healthyinOhio

My daughter definitely has Tourettes, because she has had vocal tics and facial tics for over a year, which is the prognosis of the doctor's for Tourettes.  I have tried some fish oil this week and have noticed that it has made them more frequent??  I wonder why?  Anyone have a clue?
I am going to try this on my daughter to see if it would calm her down a bit:
http://www.theherbsplace.com/Stress_J_Liquid_2_fl._oz._p_300.html
And if it works, I will probably make a tincture of it, myself.

Thanks ladyhen Wink


« Last Edit: August 05, 2008, 07:17:46 AM by healthyinOhio »
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #11 on: August 04, 2008, 10:13:54 PM » by zmama
Anyway, back when my 10yo dd was around 7, she started with a vocal tic (throat clearing) and a motor tic (strange eye movement).  After much research, I thought it might be Tourette's.  She was seen by a pediatric neurologist.  He went ahead & diagnosed her with Tourette's, gave her a prescription, but since her tics were mild, I never filled it.  Also, we worked on the tics, and she was able to stop them over the summer.  I think maybe they were stress-induced (from school).  Well, also since she was around 7, she started with migraines.  Only about once every 3 or 4 months or so.  Now, they are very frequent.  I have also noticed that now sometimes she does another motor tic (moves her head to one side).  I'm really thinking it's stress-induced.  Anyway, it just dawned on me that tics & migraines are very much related.  I've been trying to find the cause of her migraines, but no luck so far.  I think the migraines are related to the tics.  I'm wondering if this is a nervous system disorder, or if it has to do with her diet, or if it was brought on by medications/vaccinations or a virus (she was sick just prior to the throat clearing that started at age 7, she had a sore throat - maybe it was strep?), or if it's just stress.  Anyway, I'm looking for help & answers.  We might be visiting another neurologist soon, if we can find one that takes medicaid.  And I'm worried about the kind of help/info I'll get there - you know, strong medication with nasty side effects.  (it's not like she's getting migraines & tics because her body is low on a certain medication).  I want to be armed with good information.  I want to find possible causes, and natural/healthy treatments.  Anyone else out there that has experience with Tourette Syndrome and/or migraines?  What were the causes?  The symptoms?  The treatment/cures? 

Here is my experience with "Tourette's."  My ds is now 11 but when he was 7, he started exhibiting tics...throat clearing, moving his head from side-to-side as if bouncing his ears off his shoulders...I can't remember all of them.  He also would do things in twos--like knock on the table with the back of his hand two times and such.  Kind of like an obsessive/compulsive thing.  I might mention he also had epilepsy at the time and would get migraines associated with his seizures.  We visited his neurologist for his yearly epilepsy visit and I mentioned the tics to him.  He said it sounded like Tourette's but he was really hesitant to diagnose him with that.  I'm not sure why but he was not the least bit concerned, which surprised me.  He didn't even suggest further testing for it.  I might add this neurologist never pushed us to medicate our son for his epilepsy, either.  He gave me that option but when we did the research on the meds, it was extremely scary and we opted not to medicate him for anything.  Since then, the FDA has said many of these meds are not indicated for use in a child under 18 and can cause aggression, violence, and suicidal tendencies, just to name a few.

Anyway, I noticed that his tics started right around the time we were planning a move to a new home.  I am convinced they were stress-induced.  We'd just had baby #4 and then sold the only house my son knew and were moving to a new house.  He has always been our "anxious" child who worries over everything and thinks the worst and just does not handle stress or change well at all.  I don't know if your dd is a more anxious child but if you suspect they are stress-related, they probably are.  I wonder if she should have even been diagnosed because if the tics stopped for a bit, that doesn't sound like true Tourette's but I could be wrong on that.  If possible, removing whatever it is that triggers the stress or helping her to deal with it will probably take care of it.  You said that she was fine during the summer.  So if you can figure out what it is at school that is causing her stress, that might help a lot.

We found that a few months after our move to the new home, his tics went away.  So did the obsessive type behavior.  And it's funny because we never even talked with him about his tics.  We talked to the doctor out of his hearing and never once drew attention to any of his odd behavior.  He is now 11 and a couple weeks ago he told me that a few years ago, he used to do things in twos and mentioned all the things he'd done that I thought were tics, like hitting his ears on his shoulders.  He was fully aware he was doing it and from the way he talked, I don't think it was involuntary.  He had control over what he was doing which is not the case with Tourette's.  I was just floored.  But as I've thought about it, it makes sense to me now because stress brought on his seizures and stress also seemed to be the cause of his tics.  I wonder if the tics were just an "outlet" for the stress??  My dd started with strange tics when she was about 6 or 7 and I have read it is very common for that age group to do this and it not be Tourette's.  She stopped suddenly, too.

As a side note, I did notice that my son's seizures started when we began giving him the flu vaccine and they went away when I stopped giving it to my kids.  Maybe it's coincidence but I'm not so sure!!!!

Anyway, we decided to use prayer and stress management to help control his epilepsy and his short-lived tics.  That and just follwing the practical things that his neurologist told us to do,  Sounds simplistic but sometimes I think meds really make everything much worse because they often create a chemical imbalance.  Once we made those changes, it made all the difference.  We also prayed for God's healing.  He outgrew his seizures long before they had told us he would.  And the tics stopped.  He is learning to manage his stress better and to not be such a worrier.

One thing you can try is to make sure that she is well-rested.  Sleep is a key thing for epileptics but I think also anyone with any neurological dysfunction such as those with migraines.  My husband is a migraine sufferer and my son still gets them sometimes when he is overtired.

As far as the migraines--my son had migraines associated with his seizures, so you might be right that any migraines might be causing or related to her tics.  As I mentioned my husband suffers with migraines and it is very difficult to discern the triggers.  If he is up too late several nights in a row, he can be sure to have a migraine from being overtired.  Another trigger of migraines is a weather system moving through.  It has something to do with the barometric pressure.  He is borderline hypoglycemic so he cannot skip meals or he will get a migraine.  He must eat on a very regular basis.  Another thing we've found that causes his migraines is chocolate.  I have seen that things that are high in nitrates like pepperoni, hot dogs, etc. cause migraines for him.  I don't fix those foods or buy them but occasionally he will eat them and I've seen a pattern.

So as far as your dd is concerned, I would make sure she is getting 10-11 hours of sleep per night, if at all possible.  I would make sure her diet is very healthy--low in sugar and high in proteins, whole grains, good veggies/fruits and good fats.  Try to find out what is causing her stress at school and then helping her with stress management.  Structure is very important for my son--it makes all the difference.  Another thing he could not tolerate was "loud" stores--I don't know if you have these where you live but stores like Sam's that have a lot of noise and/or music.  Or restaurants that played really upbeat music would send him over the edge.  He's better now but for a time we just could not take him into places like that as it just stressed him out--like sensory overload or something.

I did some reading a few years ago when the worst of things was going on and there are vitamin deficiencies that can cause things like this--I want to say it was magnesium?  And others??

Another thing to consider is food allergy or intolerance.  We have firends whose son suffers from migraines and they have found he cannot have gluten in his diet.  They are now gluten free and her son is like a differnet child.  What the other ladies said about candida is a big thing, too.

I don't know if any of that helps but I think you were wise not to medicate her.  I could write a whole other long post about a friend's son who has Tourette's and what the medication did to him.  And what they're still dealing with.  Very scary.

Blessings!

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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #12 on: August 04, 2008, 11:26:05 PM » by boysmama
While we never got a professional diagnosis my dh displayed similar symptoms - enough so that we went to a doctor of Natural Medicine.
 
I think that most Tourettes cases can be directly linked to inflammation in the body either through parasitical infections, autoimmune disease or nutritional deficiencies or imbalance. This makes possible causes and interactions so diverse there is no one correct answer/cure. There are so many interconnections between nutritional status, quality of sleep, immune function, emotional condition and even skeletal alignment.
 
IMO, a good place to start would be with a good calcium supplement (possibly an ionic calcium) and  goat milk dairy products to go with the fish oil, healthyinohio. Another key element would be magnesium.

Over a period of months my husband's tics disappeared altogether. We ran out of supplements and circumstances hindered him from staying on the anti inflammatory diet he was following. He has occasional episodes where we can link the tics with other signs of inflammation. Sometimes we can pinpoint a cause such as stress, lack of sleep, dehydration (and subsequent reduced, sluggish eliminations)  or processed adulterated meals as a trigger.
Hope this helps. It is quite complex. The more I read the more irrate I become that this can be diagnosed as a "syndrome" and then medicated.  Sad
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #13 on: August 05, 2008, 07:25:42 AM » by healthyinOhio

 
IMO, a good place to start would be with a good calcium supplement (possibly an ionic calcium) and  goat milk dairy products to go with the fish oil, healthyinohio. Another key element would be magnesium.


Well, the fish oil would be an anti-inflammatory, and her tics are worse on it?  We consume raw milk and cheese weekly, so she gets her share of calcium.  We eat grass fed organic beef and chicken and we don't vaccinate.
We don't have any stress in the house, because nothing major is going on.  ??  UGH! ??
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #14 on: August 05, 2008, 08:03:13 AM » by boysmama

 
IMO, a good place to start would be with a good calcium supplement (possibly an ionic calcium) and  goat milk dairy products to go with the fish oil, healthyinohio. Another key element would be magnesium.

Well, the fish oil would be an anti-inflammatory, and her tics are worse on it?  We consume raw milk and cheese weekly, so she gets her share of calcium.  We eat grass fed organic beef and chicken and we don't vaccinate.
We don't have any stress in the house, because nothing major is going on.  ??  UGH! ??
I don't understand the relationship between vitamin D and calcium well enough to explain so going by what the natural doc said more of vit D and magnesium (which are very neccessary) can further deplete circulating calcium...In the long run you want more vit D, etc, but you also have to supply extra calcium.
Another case senario would be that the fish oil you are using is rancid or processed in which case it would INCREASE inflammation. Not doubting you, just suggesting a few possiblities.   Smiley I would also check to see that the fish oil is not fortified with artificial forms of A, D or E.
I'm guessing your raw milk and cheese are from cow dairy? It's hard to suggest and harder to implement  Tongue but try getting her off all cow's milk and all wheat for a few weeks. Wouldn't hurt to go off All grains for a time, not forever, but long enough to see if it makes a difference. Make up the carbs in fruits and veggies.
Personally I think that there is still a place for cow's milk dairy, but the difference anecdotal evidence supplies is very clear- goat milk is superior. I really wish I could back this up with scientific evidence, but haven't had the time to compile anything.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #15 on: August 05, 2008, 08:10:08 AM » by boysmama
Also, a blood test can show deficiencies and levels to help you know what to supplement if things are out of balance. The life is in the blood and if you can get a good understanding of what is circulating it clears up many questions.
We found that if you can find a doctor who orders these tests most insurance will cover it. To find the doctor  Undecided
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #16 on: August 05, 2008, 12:51:11 PM » by healthybratt

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My daughter definitely has Tourettes, because she has had vocal tics and facial tics for over a year, which is the prognosis of the doctor's for Tourettes.  I have tried some fish oil this week and have noticed that it has made them more frequent??  I wonder why?  Anyone have a clue?
I am going to try this on my daughter to see if it would calm her down a bit:
http://www.theherbsplace.com/Stress_J_Liquid_2_fl._oz._p_300.html
And if it works, I will probably make a tincture of it, myself.
Increasing fats allows the body to release fats that were being stored for later usage.  The stored fats are where most of the toxins we come into contact with get absorbed and stored, so increasing good fats can allow the tissues and organs to release stored toxins into the body and bloodstream.  This could actually cause there to be more toxins in the bloodstream than she typically has causing more tics and reactions.  Maybe you need to give her something that would ensure the toxins being released are being moved out of the body??  I'm thinking chlorella??

One other thought, what about the quality of your fish oil.  Could it contain levels of mercury that would increase the toxicity in her body and therefore make her symptoms worse?  Maybe you could try a different brand?

Just some thoughts that came to mind.

« Last Edit: August 05, 2008, 12:56:44 PM by healthybratt »
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #17 on: December 04, 2008, 12:41:13 AM » by healthyinOhio
I did some more research on Tourettes this week, because our daughter's tics are just out of control.  I read a couple testimonies of people treating their children with Nystatin for a yeast infection.  They had similar testimonies with their children as we have with Hannah:  early onset of chronic ear infections, colic, repetitive antibiotics, same tics starting at the same age, etc. 
So, I hope to start it around the first of the year.
Also, I read one testimony that when a couple eliminated all allergenic foods from their child's diet, their tics stopped.  So, I will try the yeast first and then move on to the allergies.  I will post with any updates.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #18 on: December 04, 2008, 12:58:52 AM » by Whiterock
After doing the Nystatin, you may want to try the GAPS diet to heal her gut. It may take care of the allergies too. (I have no experience with the diet but am basing this on what I've read and the testimonies.)

WR
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #19 on: December 04, 2008, 01:05:13 AM » by healthyinOhio
After doing the Nystatin, you may want to try the GAPS diet to heal her gut. It may take care of the allergies too.

I thought Nystatin was the safest yeast killing type of antibiotic.  No?
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #20 on: December 04, 2008, 08:56:39 AM » by boysmama
After doing the Nystatin, you may want to try the GAPS diet to heal her gut. It may take care of the allergies too.

I thought Nystatin was the safest yeast killing type of antibiotic.  No?
The Nystatin would kill the yeast (hopefully), but does nothing to heal the gut other than getting rid of the bad guys. Following up with the GAPS would heal. I am very impressed with the eating plan for situations like yours.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #21 on: December 04, 2008, 09:00:30 AM » by mykidsmom
After doing the Nystatin, you may want to try the GAPS diet to heal her gut. It may take care of the allergies too.

I thought Nystatin was the safest yeast killing type of antibiotic.  No?

Nystatin is not an antibiotic.  Is is an anti-fungal. 
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #22 on: December 04, 2008, 09:20:27 AM » by Whiterock
After doing the Nystatin, you may want to try the GAPS diet to heal her gut. It may take care of the allergies too.

I thought Nystatin was the safest yeast killing type of antibiotic.  No?

Oh, yeah I probably I didn't phrase that right. I meant that the GAPS would be good for healing the damage done by the Candida. If the Candida is removed (nothing will kill all of it, and you are supposed to have some) but the damaged gut isn't healed, then she may continue to have nagging problems related to that damage, and it is more likely that the Candida will come back.

Check out the info on GAPS. It looks like a wonderfully healing program.

WR
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #23 on: December 04, 2008, 10:42:53 AM » by mykidsmom
I did some more research on Tourettes this week, because our daughter's tics are just out of control.  I read a couple testimonies of people treating their children with Nystatin for a yeast infection.  They had similar testimonies with their children as we have with Hannah:  early onset of chronic ear infections, colic, repetitive antibiotics, same tics starting at the same age, etc. 
So, I hope to start it around the first of the year.
Also, I read one testimony that when a couple eliminated all allergenic foods from their child's diet, their tics stopped.  So, I will try the yeast first and then move on to the allergies.  I will post with any updates.

HIO,

I just went back and read this post.  You can get nystatin in pill form for her to take daily.  They usually prescribe it in 500,000 iu's per tab.  She would likely take two a day as a youngster.  We paid $60 for 30 days worth (which is 4 a day for an adult).  However, it did help tremendously!  It's a long term prospect treating candida this way.  I had one on it for a year.  If you don't do some sort of candida diet to it will be very slow going and really no healing as much as not getting worse. 

Our doctor did not know nystatin could be given orally (tab form) so you might have to educate your doctor. 

hth

patti
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #24 on: December 04, 2008, 01:03:40 PM » by healthyinOhio
Yes, I planned on doing a yeast free diet with the Nystatin.  I am not sure about the tablet form?  Is this a pill you would swallow?  Because she cannot swallow pills.  The apple doesn't fall far from the tree.  Roll Eyes 
We take a lot of TTU in the house, so I was hoping to be able to repopulate with good bacteria as well.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #25 on: January 15, 2009, 08:51:59 PM » by healthyinOhio
I did some more research on Tourettes this week, because our daughter's tics are just out of control.  I read a couple testimonies of people treating their children with Nystatin for a yeast infection.  They had similar testimonies with their children as we have with Hannah:  early onset of chronic ear infections, colic, repetitive antibiotics, same tics starting at the same age, etc. 
So, I hope to start it around the first of the year.


Well, the Nystatin didn't improve the tics.  It did improve other things going on with her. So, we are back to square one with finding a cure for her Tourettes.  The doctor suggested that her tics may be caused by complications to allergies, so in February she is going to go on an allergy desensitization program.  I will update with any progresses.
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #26 on: January 15, 2009, 09:41:25 PM » by mykidsmom
I did some more research on Tourettes this week, because our daughter's tics are just out of control.  I read a couple testimonies of people treating their children with Nystatin for a yeast infection.  They had similar testimonies with their children as we have with Hannah:  early onset of chronic ear infections, colic, repetitive antibiotics, same tics starting at the same age, etc. 
So, I hope to start it around the first of the year.


Well, the Nystatin didn't improve the tics.  It did improve other things going on with her. So, we are back to square one with finding a cure for her Tourettes.  The doctor suggested that her tics may be caused by complications to allergies, so in February she is going to go on an allergy desensitization program.  I will update with any progresses.

HIO,

Have you done an ELISA food allergy test on her?  I wonder if food allergies can cause problems that would exacerbate tourettes?  Just a thought........

patti
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #27 on: February 19, 2009, 01:47:00 PM » by healthyinOhio
We took our daughter to see an environmental allergist who was recommended by our doctor.  I was very impressed to hear that the allergist never saw a Tourettes case that he couldn't find out the culprit.  He said almost always it is a severe allergy to formaldehyde. 
He questioned if we had any exposures to it.  I told him that unfortunately we vaccinated, so formaldehyde was in the vaccines.  He said that would be some of it, but also said that our new carpet was not helping.  Even though we had it opened in the factory and cleaned, it is still out gassing.  We got the carpet to sell the house, and when it didn't sell over a year, we took it off the market, not even considering the constant poisoning.
Well, she was found allergic to many food and other allergies, one of which was, you guessed it, formaldehyde. (Gee, who wouldn't be allergic to that awful chemical?)
Anyways, I am trying so hard NOT to be so excited and optimistic, but she hasn't had a tic or tourette episode in two days!
The first week that we eliminated her allergens and put her on "allergy shots", her tics decreased by half.  But I was disappointed they weren't completely gone.  Well, it has been almost a month, and it is so nice to finally have my daughter back.  Not only does she not tic, she pays attention so much more.  There is a cure for Tourettes!  My daughter is living proof of that!  Wink
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #28 on: February 27, 2009, 10:55:18 PM » by kimmer
HiO I'm so happy to read your posts on this subject.  I came here tonight hoping to find an answer to my middle son's tics.  I think everything started in the last couple of months.  It began with funny things with his eyes.  (My brother had tics and I suspected that might be what was going on).  He had strep throat a couple of weeks ago and was on antibiotics for that.  This week he has a new thing going on with his voice, not really a grunt, more of a repetition of sound.  He will say something, anything and when he finishes, he makes the vocal sounds.  I asked him about it and he said that he can't not do it, he has to do it.  Well, I immediately thought of tourettes and wanted to cry.  Instead of crying I came to welltellme and thank goodness I did.  I took 2 allergy shots per week for several years, so I'm familiar with it.  My question is this, what is an environmental allergist?  In my own case, I was tested for food and non-food allergies.  Should I be looking specifically for an environmental allergist?  Thanks 
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  Re: Tourettes Syndrome: Causes & Treatments
« Reply #29 on: February 28, 2009, 09:41:00 AM » by healthyinOhio
HiO I'm so happy to read your posts on this subject.  I came here tonight hoping to find an answer to my middle son's tics.  I think everything started in the last couple of months.  It began with funny things with his eyes.  (My brother had tics and I suspected that might be what was going on).  He had strep throat a couple of weeks ago and was on antibiotics for that.  This week he has a new thing going on with his voice, not really a grunt, more of a repetition of sound.  He will say something, anything and when he finishes, he makes the vocal sounds.  I asked him about it and he said that he can't not do it, he has to do it.  Well, I immediately thought of tourettes and wanted to cry.  Instead of crying I came to welltellme and thank goodness I did.  I took 2 allergy shots per week for several years, so I'm familiar with it.  My question is this, what is an environmental allergist?  In my own case, I was tested for food and non-food allergies.  Should I be looking specifically for an environmental allergist?  Thanks 

Well, I am glad that you found help on WTM, too!  It is so wonderful here.  Grin
There is a possibility that your son reacted to his antibiotic because of a mold allergy(penicillin?). 
I can't stress enough how much my daughter's tics are absolutely 100% caused by allergies. She had not had a single tic in over a week, and then one day, we let her cheat.  It was a birthday and she had milk and wheat and corn.  Oh, gosh!! Tic city!!! 
I am not sure how to find an environmental allergist compared to a regular one. All I know is that was the Dr.'s title and that is what Doris Rapp, author of Is This Your Child, suggested. It is a good read for those who want to find answers to unexplained behavior in their children.
Good luck!  I hope you find a cure for your son. Good luck!  Wink
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