Lyme Disease: Causes, Testing, Diagnosis & Treatments

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #90 on: December 30, 2009, 06:17:44 PM » by mommyjen

Do not view these pictures if you have a weak stomach! The Vitamin C and salt therapy is fascinating and I've already started Vitamin C flushes for many reason and killing off any pathogens that may be present is certainly one of them. The thought of having anything like this in my body is just creepy, gross! Shocked

Borrelia burgdorferi/lyme bacteria photos
http://www.lymephotos.com/bb/index.html

Vitamin C therapy with photos
http://www.lymephotos.com/

FAQ about Therapy
http://www.lymephotos.com/faq/index.html

Printable Treatment Protocol
http://www.lymephotos.com/printableprotocol.html

"Insects, arachnids, and ticks carry many different types of bacteria, viruses, nematodes, and nematomorphs. We have found many strange things, which we have tried to explain. We must say we are not medical professionals. We were just desperate people looking to get better. We have lost all faith in the medical profession. We were tired of having doors closed in our faces. We researched, contemplated, and came up with an idea. Research the late, great Linus Pauling. He took at least 18,000 mg of vitamin C every day. We tried to read everything we could about Lyme disease. Supposedly cows somehow beat Lyme disease. We considered, why cows,why not other animals? Cows love salt. Humans consume less salt today than they ever have. Early Americans consumed approximately 20 grams a day. The consumption has been drastically decreasing with each decade. Could it be that the decrease in salt consumption has allowed these new illness, such as Lyme, Chronic Fatique Syndrome,Fibromyalgia, Alzheimer's Disease, and Gulf War Syndrome to flourish. Now just lately, the whole salt scare has reversed and the researchers admit that they were wrong. So go ahead and shake that salt! As far as treatment goes, the results were forthcoming with the taking of 8 grams or more. We have actually increased to as much as 24 grams, but find that no one really wants to take that many pills in one day. Remember it is a one-two punch: the treatment is both salt and vitamin C. After years of suffering, finally life is back to normal. We still do not know if organisms lie dormant in our body; therefore, the treatment continues, simply as maintenance. The extreme pain no longer exists. The knot on the side of the neck is gone. We are at peace. We wish you all good health! Feel free to contact us with your opinions and questions. Though we may not be able to answer each one individually, we will post findings as they come. Hang in there and think positive thoughts."

http://www.lymephotos.com/lastword/index.html

« Last Edit: December 30, 2009, 06:34:41 PM by mommyjen »
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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #91 on: December 30, 2009, 09:09:21 PM » by ladyhen

mommyjen -

I'm so glad that you brought this thread up again. Our oldest daughter had chronic Lyme and used this protocol with tremendous results. She sees a Dr. in Arizona who uses natural methods.
I totally agree with the hypothesis about salt, too.
Our daughter has posted a little about her experiences Here.

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #92 on: December 30, 2009, 09:20:32 PM » by mommyjen

Quote from: ladyhen on December 30, 2009, 09:09:21 PM

ladyhen, oh thank you for updating! You mentioned your daughter "used" to have chronic Lyme...does that mean she is totally better without relapse? If so, that is wonderful to hear!! Can i ask what her symptoms were? Do you feel the salt/vit. C combo was the primary cure or were there other treatments the Dr. used that may have contributed as well. If you have the time, I would love to hear a bit more. Thank you!

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #93 on: December 31, 2009, 10:10:16 AM » by ladyhen

Quote from: mommyjen on December 30, 2009, 09:20:32 PM

She has listed some information on the WTM thread linked in my previous post, but there is a lot involved. She has low adrenal and low thyroid function, fibromyalgia, neurological damage, fatigue and muscle weakness, chronic pain, chemical and food allergies, weight loss, and much more.
She has been considered Lyme free for over a year now, according to our doctor. She continues in his care for the conditions listed, and takes a variety of supplements.
She took the salt and vit. C therapy as well as having IV salt and C treatments a couple of times a year when she went to see the Dr. She (as well as the rest of our family) uses a large amount of salt and believes it is beneficial. Of course, we also drink a LOT of water and both the salt and water are good quality, pure.
After having several severe conditions in our family that we tried to treat ourselves, I do recommend a good natural practitioner. Our doctor is able to test for exact problem, test his prescribed treatments, and has a high success rate. He is an MD that is trained in classical homeopathy. A truly amazing man!

« Last Edit: January 09, 2010, 11:14:56 PM by ladyhen »
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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #94 on: January 09, 2010, 08:06:21 PM » by mommyjen

Okay, a milk customer just came by who heard about my food allergies from hubby and he wanted to mentioned to me his Aunt who was having awful health problems and discovered she was allergic to gluten as well as her daughters and their children. Well things got better for awhile but then she took another turn for the worst and through testing realized she had Lymes disease and her daughter and their children tested positive too. Now she's doing much better after treatment. So, I'm just focusing on what to eat but in the near future I do want to look at possible underlying causes of food allergies and Lymes disease was one of them, but now I've heard IRL and am really wondering if this is a possibility? I forgot to ask if her food allergies went away. Anyone got any experience? Lotsaboys? Grin

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #95 on: January 09, 2010, 11:22:37 PM » by mykidsmom

Food allergies themselves are a chicken and egg scenario. They are caused by food sitting in the gut undigested and putrifying. Eventually that causes holes in the gut and the putrified food leaks through. The body attacks the food protein as a foreign body, thereby causing a food allergy. But poor digestion and absorption have to exist for the food to sit and putrify for that whole scenario to take place. So the question is, does poor digestion and malabsorption come first and then the food allergy? Or the food allergy come and then poor digestion/absorption? I think it's the first.

That's from all that the ND gave me.

hth

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #96 on: January 09, 2010, 11:29:07 PM » by mommyjen

Quote from: mykidsmom on January 09, 2010, 11:22:37 PM

It helps but leaves me with more questions! Roll Eyes

So what causes poor digestion? Specifically, can Lymes disease cause poor digestion? Folks who have lymes say they commonly have food allergies according to my online searching. So what about lymes causes food allergies? Huh

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #97 on: January 09, 2010, 11:54:17 PM » by lotsaboys

Funny you mentioned a chicken and egg, Patti. Grin

That is the example I was going to share regarding Lyme and symptoms, only in a different way...

Food allergies are a symptom of Lyme and as with all diseases, you don't treat the symptom to achieve a cure but you attack the disease itself. Or as one Lyme Specialist said it, "We treat the chicken, not the egg".

However, since Lyme causes your body to be unable to handle certain foods, eliminating them from your diet is part of the cure. Its just that, like the Aunt in mommyjen's story found out, it doesn't get to the heart of the problem.

Many Lyme sufferers I know find that avoiding certain foods is extremely helpful and frees their body in many ways to fight the fight. So, if you do have Lyme (I sincerely hope you don't) eliminating foods should help you feel better for awhile simply because that is giving your body less stress to deal with. And since this is a disease in which symptoms are the main way to determine improvement, most folks eventually become very tuned in to what foods will or will not effect their well-being.

As far as whether food allergies ever go away, that depends on a person's level of improvement. As a whole, dairy (with the exception of cultured) and wheat seem to be a 'forever' problem, but eventually a lot of foods can be tolerated again.

« Last Edit: January 11, 2010, 10:05:49 AM by lotsaboys »
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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #98 on: January 10, 2010, 12:15:12 AM » by lotsaboys

As for testing, while there is much research and efforts being made for a more accurate test for Lyme, the best I've heard of for now is the Western Blot. And even then most good LLMDs recommend only a few labs. One of them is IGeneX- its out there somewhere- in Washington or Oregon.... kinda all the same diff to me. Wink

But, this is very important- you cannot go by the normal "positive" or "negative" reading of test for accuracy. If you have only ONE "fingerprint band" you have Lyme disease.

Quoting Dr. James Schaller MD, one of the best authorities on Lyme:
"Many patients and practitioners are profoundly ignorant about how to interpret a Western Blot Test. They say it is either "negative" or "positive". Wrong. If a person has one fingerprint band, they have Lyme disease. These highly specific bands, widely accepted in the world of literature, are 13, 14, 17, 21, 23, 24, 25, 28, 31, 34, 35, 37, 39, 47, 50, 54, 83, 84, 93, and 94. The lab can be a junk lab that invests nothing to optimize their testing kit, but if one of these bands is positive-Lyme is present. IGeneX has the best Western Blot in the world. No other Lab has invested so much, for so long, to create the best test. If your clinician wants to first use an ELISA, simply run. To put it bluntly, the ELISA test as a screening tool is useless, missing even the most obvious PCR positive patients with clear past histories of massive Bull's Eye rashes, which, while not the norm, provide evidence of spirochetes."

hth!

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #99 on: January 10, 2010, 12:34:31 AM » by lotsaboys

A bit on 'why' a Lyme patient needs to avoid certain foods....

-Every Lyme person has leaky gut, so right there you'd need to to be on a strict anti-yeast type diet. No dairy, wheat, sugar (including fruit for the first while), refined and processed foods, etc., etc....

-Every Lyme sufferer has chronic pain, Fibromyalgia, joint pain, migraines and more, so that is the purpose for eliminating nightshades.

There is so much more I could explain if I had time, but this is the basics. And a VERY important basic. Wink

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #100 on: January 11, 2010, 09:28:45 AM » by healthybratt

Quote from: mommyjen on December 22, 2009, 06:07:06 PM

I have severe fatigue, neurological stuff (that is hard to see in writing Embarrassed

), no arthritis...

This post and it's subsequent posts have been split and moved here.

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #101 on: January 12, 2010, 01:58:03 PM » by mommyjen

Quote from: lotsaboys on January 10, 2010, 12:15:12 AM

IGeneX has the best Western Blot in the world. No other Lab has invested so much, for so long, to create the best test.

Can Lymes be transmitted sexually? I'm looking into the IGeneX lab. Don't want to waste money on tests that are inferior, but it isn't cheap. Embarrassed

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #102 on: January 12, 2010, 02:35:16 PM » by lotsaboys

According to the books I've read it can be but I think its more rare. More common is through a tick or mosquito bite, of course Roll Eyes

, or mother to infant via pregnancy and/or breastfeeding.

I know, IGeneX isn't cheap, but its been so worth it for the ones I know who have bit the bullet.

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #103 on: January 12, 2010, 02:39:09 PM » by mommyjen

Quote from: lotsaboys on January 12, 2010, 02:35:16 PM

According to the books I've read it can be but I think its more rare. More common are through a tick or mosquito bite, of course, or mother to infant via pregnancy and/or breastfeeding.

I know, IGeneX isn't cheap, but its been so worth it for the ones I know who have bit the bullet.

Good to know. Here's their site: http://igenex.com/Website/#

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #104 on: January 12, 2010, 02:46:33 PM » by lotsaboys

Guess I should mention that contracting Lyme from via mother or sexually is not normally recognized or acknowledged by most of mainstream medicine.

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #105 on: January 12, 2010, 03:05:06 PM » by mommyjen

I went ahead and ordered a free test kit (complete panel) from the IGeneX site. When/if I'm ready to test, I need to bring it to my ND and she does the rests and sends it off to them. The cost is $475.00 for the complete panel. I'm wondering though...is there a possibility of a false positive? How could I do a little research on this company and their ethics? Not trying to be suspicious just want to be look well into this decision. Any thought lotsaboys? Anyone else? Thanks!

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #106 on: January 12, 2010, 10:49:02 PM » by lotsaboys

mommyjen, I don't know much about checking into the Lab, but I do know several people who have received their positive Lyme test through them after testing negative before with other labs. And these folks definitely have Lyme because not only do they have a million symptoms to prove it

, but they are responding to Lyme treatment and improving.

As far as false positive, remember- don't go by 'negative' or 'positive' alone. If you have just ONE fingerprint band, it IS Lyme. So, if you go by that I don't think you will end up with a false positive, kwim?

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #107 on: January 20, 2010, 11:42:46 PM » by mommyjen

Quote

A yeast diet is imperative, but many are not effective because they do not understand that in order for equilibrium to be restored to the body a very strict, super low-carb diet must be combined with proper amino
acid-vitamin-mineral supplementation. My experience with thousands of yeast
patients is that if this protocol is not followed, the body will not heal. When the protocol is strictly adhered to we find that even cases such as antibiotic resistant Lyme Disease will disappear. Once the body has been brought back into balance people can revert to a more normal diet.

I am becoming more and more convinced that if fix our digestion (HCl is imperative for protein digestion and MOST people ARE deficient in HCl to one degree or another) and give our body the correct food/nutrients that it can do an amazing job of healing and even ridding the body of pathogens.

An EXCELLENT article, although it is obvious the author is selling his protein supplement. Tongue

http://searchwarp.com/swa4444.htm

I'm not ruling out Lymes as a possibility but think that getting mercury out is probably the first thing to start with as it mercury depresses the immune system and it seems to me that wheter I have Lymes or not I would need to have them out and if I certainly do then having them out prior to treatment would be important for a strong immune system to make the treatment the most effective. If I'm feeling great afterwards then there will be not need for testing/treatment. Trying to formulate a plan that makes the most logical sense. But definitely learned a lot about Lymes and will keep continue to keep that open as a possible answer to my health concerns!

« Last Edit: January 21, 2010, 12:41:29 AM by mommyjen »
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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #108 on: January 24, 2010, 08:38:56 PM » by healthy2009

Quote from: Becky in WV on April 26, 2007, 08:48:52 PM

I'm not sure how much of a drive any of these will be for you, but for what it's worth...a lady who runs a local Lyme disease support group gave me this list of doctors when our daughter was bitten by a deer tick a month or so ago. I'm not sure which ones of these will treat children...one is listed as a pediatrician though. We ended up taking our daughter to our family doctor because no one on this list could see her soon enough. Our Dr. prescribed 4 weeks of antibiotics without a positive test. But she was on antibiotics the day after the tick bite so I think we caught it early enough. I know I've seen a website that listed Lyme-friendly doctors in the U.S. Maybe if you do a search you could find it?

Dr. Mark Sivieri, Laurel, MD 301-490-9911
Dr. James Matthews, Gaithersburg, MD 301-216-2065
Pediatrician Dr. Alan Vinitsky, Gaithersburg, MD 301-840-0002
Dr. Norton Fishman, Rockville, MD 301-330-9430
Dr. Letitia Short, Towson, MD 410-337-2707
Dr. Kenneth Singleton, Lutherville, MD 410-296-3737
Dr. Elisabeth Lucas, Lutherville, MD 410-823-3101
Dr. Richard Berg, Lutherville, MD 410-583-2711
Dr. Julia Wen, Lutherville, MD 410-583-2711
Dr. Sarah Fletcher, Sterling, VA 703-421-7000
Dr. Leila Zackrison, Fairfax, VA 703-359-9300
Dr. Trent Nichols, Hanover, PA 717-632-0300

Did anyone of you used the above listed doctors. Please let me know. I was diagnosed with Lyme recently and am looking for a doctor.

Thank you

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #109 on: January 25, 2010, 09:58:53 AM » by lotsaboys

A book I highly recommend on Lyme Disease, very definitive and so readable: Cure Unknown by Pamela Weintraub

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #110 on: February 10, 2010, 12:15:16 PM » by lotsaboys

A great documentary for understanding the truth about Lyme is "Under Our Skin". Here is a trailer:
http://www.youtube.com/watch?v=sxWgS0XLVqw

Another really informative video:
http://vimeo.com/2354218

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Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
« Reply #111 on: February 23, 2010, 11:01:47 AM » by lotsaboys

Regarding what areas are more endemic to Lyme...

It has become the fastest growing epidemic in the nation and it doesn't really matter where you live or have/haven't been.

There is no area left in the world where ticks and/or the disease cannot be found, except maybe Antarctica.

Most people forget that it's not only deer that carry ticks.

And as most people do not have deer in their yards, it's actually birds, rodents/mice, dogs/cats, squirrels, and chipmunks which carry the majority of ticks into your yard, neighborhood park, etc...

These articles explain it more:

http://www.medicalnewstoday.com/articles/140407.php

http://www.centuryinter.net/tjs11/bug/l13.htm

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