Auto-Immune Protocols

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Auto-Immune Protocols
« on: January 24, 2009, 09:19:03 PM » by NotLuckyButBlessed

I see many threads on specific AI disorders but none specific to protocols people have tried or recommend. There is so much info, I was hoping we could discuss protocols for AI disorders in general in this thread? Unfortunately, it looks like I have one of them and am waiting on tests to figure it out and to find out of my kidneys are repairable. In the meantime, I am seeing a good ND but also trying to make a plan of attack.

I have read about using the following and am wondering if any of you have experience with or opinions about any of them? Any other ideas? I am not looking so much for pain relief as I am CURES -- yes, I do believe they can be cured.

~ Cod Liver Oil: How many Beeyoutiful pills or dosage for liquid form?
~ Aloe Vera: topically and/or internally, dosages?
~ Propolis: what forms are best? What about honey?
~ Glyconutrients: What brands? Foods to eat rather than pills?
~ Essential Oils (Eucalyptus, Rosemary, Lemon, Orange, Peppermint, lavender)
~ Herbs: Tinctures, teas or what? Ginger, termeric,echinacea, lavender, licorice,ginseng, arnica, calendula)
~ Raw Apple Cider Vinegar
~ Raw food diet
~ Foods: Pineapple is rich in bromelain. Papaya.
~ Anti-Inflammatory Diet(s)
~ Rebounding, massage, colonics for lymphatic system

Some forms of Auto Immune disorders attack organs such as the kidneys (such as Lupus) so of course that would need to be taken into consideration if so.

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Re: Auto-Immune Protocols
« Reply #1 on: January 24, 2009, 09:25:27 PM » by NotLuckyButBlessed

I forgot to mention:
~ Oxygen Therapy

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Re: Auto-Immune Protocols
« Reply #2 on: January 24, 2009, 11:27:40 PM » by mykidsmom

Hey there,

Good thread. I have an AI (bladder) and have used CLO (1 tbls daily) for several years. This does seem to have helped. No sugar will eliminate most symptoms for me until late at night. I've used aloe vera internally (1 tbls in water). Not sure if it really did anything for me. I use lavendar EO in baths when my bladder is in spasms and it really helps to calm it down and then helps me sleep.

I've been at this 5yrs. I'm with you. I believe they can be cured. I have gotten better. It's just REALLY slow. I am getting ready to do the Budwig Mixture (flax oil and cottage cheese) to see if there are any changes. I'll let you know.

I do personally know someone who has hasimotos and she went to an all raw food diet (Hallelujah diet) and is fine today. So I know that diet works. I just don't think it's good for long term. I also don't think I could do it and still keep my sanity so I haven't tried it.

I just started with a new ND in Tigard and I'm hopeful (based on his work with my family so far) that he is going to have a lot of answers for me.

patti

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Re: Auto-Immune Protocols
« Reply #3 on: January 25, 2009, 02:20:52 AM » by NotLuckyButBlessed

Thank you for posting here. I am still in shock to a large degree because I have never had health problems except for my very difficult pregnancies. Never get bladder or kidney infections, no candida problems, most years I don't even catch a cold. So I am seriously puzzled as to why the kidney damage and inflammation now.

Is your friend with Hashimoto's on a raw food diet forever? Or did she just do it while her symptoms persisted?

I have read that virtually ALL people with any AI disoprder have Leaky Gut Syndrome. And I have a friend who used aloe vera, 1/2 cup each night and 1/2 cup each morning (morning not as important as pm but was just added insurance) for 30 days, who successfully treated hers as well as her candida with some other simple treatment at the end of the 30 days. So tonight I am taking a 1/2 cup of gel, not sure if I will also do morning. It is also a source of glyconutrients which are said to help repair auto immune communication between cells.

Am working on my protocol but think I will include some/all of the following Bee Strong, Enzymes by tablet or pineapple or papaya, CLO, GSE for a brief time then ACV with honey, alkalized water 2 qts per day, Vitamin C, Spirulina and coconut oil 2 T per day. Also no dairy or grains. Would skip meat but my ND says I need the protein since my body is dumping so much out my kidneys that should be staying in. Those are my ideas but still mulloing over and really appreciate the input you gave.

I take my baby to an ND in Tigard that goes to my church:) Dr. Dyler is his name. www.drdyler.com

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Re: Auto-Immune Protocols
« Reply #4 on: January 25, 2009, 06:43:29 PM » by mykidsmom

Quote from: NotLuckyButBlessed on January 25, 2009, 02:20:52 AM

Is your friend with Hashimoto's on a raw food diet forever? Or did she just do it while her symptoms persisted?

I take my baby to an ND in Tigard that goes to my church:) Dr. Dyler is his name. www.drdyler.com

The gal with Hashimoto's is still on a raw food diet today (it's been 10+ years). It has literally become an idol to her. After doing much reading on this diet I don't believe it's healthy long term (Vit. B issues, fertility issues, etc.). However, I do believe for healing that it would be good.

We saw (and talk to by phone) Dr. Dramov in Tigard. What a small world. I'm a state away now and how I wished we knew him when we lived there! Oh well. Thankful to have found him now and he's also a christian which was icing on the cake for me. Grin

The only thing I'll say about the CLO is I am discovering that it is sometimes not good for certain things. Like, when I gave it to my son it actually made his food allergies worse. Much worse! I kept thinking I was boosting his immune system when in reality I was making it worse. So there are situations where CLO would not want to be added to someone's protocol. His was a digestion issue with fats that caused his allergies. You will want to verify that your digestion/aborption of fats is good.

Have you had your stools tested to see what kind of shape your intestines are in? It would tell you a lot about if you have candida, how bad, how well you are or aren't digesting and if those things are affecting your kidneys. Since 80% of our immune system is in the gut, I would focus on "what's wrong with your gut" that your body got to where it's at? KWIM? We are in the process of doing this for me right now. I imagine it's going to shed some light on why I've got an AI.

Everyone has a "weak" spot in their bodies. Some people's "weak" spots are worse then others. Since your AI attacked your kidneys, your kidneys are your weak spot. So taking things to strengthen them would make sense. But I'd think you'd have to do it gently or you could cause more damage. My bladder is my weak spot. If I try to detox to hard or fast it goes spastic on me. If I do slow and steady, then it handles the detoxing fine. So keep that in mind.

Also, my reading/experience has been that AI's are caused by a toxic body. So I would guess the less toxic you are (because of good diet, no chemicals, etc) the less time it will take to heal. I know I was toxic beyond belief which is why I'm still working on this 5yrs later.

patti

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Re: Auto-Immune Protocols
« Reply #5 on: January 25, 2009, 08:29:55 PM » by NotLuckyButBlessed

In my researching I am seeing that apparently there are some modes of thought that the specific AI they think I may have is caused by a specific bacteria (Klebsiella) coupled with a genetic marker.

GSE has shown effective in killing Klebsiella. Not much I can do about the genetic marker, but if I can kill the bacteria and make sure I don't have a leaky gut it seems that would be progress!

Thank you for your response and suggestions. I am sure I will refer to this thread frequently as time goes by!

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View my blog at www.ButIHadATiara.blogspot.com

Our family blog is www.ushouldbesolucky.blogspot.com

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for 21 years.

Mom to treasured XXXXYX

Re: Auto-Immune Protocols
« Reply #6 on: January 25, 2009, 11:19:45 PM » by mykidsmom

Quote from: NotLuckyButBlessed on January 25, 2009, 08:29:55 PM

NLBB,

That's one of the bacterias they just found in my DS & DD's gut!! For my boy, they were able to kill it off with berbine (Candibactin). For my girl, hers was resistant to even the strongest stuff they had for it (Uva Ursi) so the ND is still researching what to do for her. Obviously we won't be doing antibiotics. Tongue

I wonder how many people have an overrun of these bacterias and don't know it? Did they do a stool test to find yours or some other test? We found my kid's via stool test. Actually the ND is thinking to treat our whole family because he thinks we've been passing bacteria back and forth for quite some time. I haven't asked him yet if it's possible I could have passed it to them in pregnancy. That's for another appt.

I'll let you know if the Budwig Mixture does anything for me. I'm hoping to try it tonight (I'm scared to death of it!). Tongue

patti

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For I know whom I have believed and am persuaded that he is able to keep that which I've committed unto him against that day.

Re: Auto-Immune Protocols
« Reply #7 on: January 27, 2009, 01:15:30 PM » by healthybratt

Quote

Why is leaky gut syndrome important? The leaky gut syndrome is almost always associated with autoimmune disease and reversing autoimmune disease depends on healing the lining of the gastrointestinal tract. Any other treatment is just symptom suppression. An autoimmune disease is defined as one in which the immune system makes antibodies against its own tissues. Diseases in this category include lupus, alopecia, rheumatoid arthritis, polymyalgia rheumatica, multiple sclerosis, fibromyalgia, chronic fatigue syndrome, Sjogren's Syndrome, vitiligo, thyroiditis, vasculitis, Crohn's Disease, ulcerative colitis, urticaria;hives, diabetes and Raynaud's disease.

http://www.mold-survivor.com/leaky_gut_syndrome.html

I Think I Have Candida and/or Leaky Gut: What Now?

Quote

Arthritis, fibromyalgia, coronary artery disease, ulcers, psoriasis, inflammatory bowel disease, multiple sclerosis, are just a few of the conditions in which infection and immune response appear to be the driving force in the disease. While anti-microbials seem the logical approach, there is a growing realization that immunology may be the approach that provides long term answers.

Restoring balance and function to your immune system, in the face of a chronic infectious (viral, bacterial, fungal, parasitic, etc) challenge is a fundamental challenge necessary for recovery. To understand the therapeutic approach and goal of optimal immunity, you must know a little bit about cytokines, which ultimately control our immune responses. Using nutrients and many other factors to induce or suppress specific cytokine responses is one approach that will be explored in this web page.

http://www.drkaslow.com/html/immune_restoration.html

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