Fibromyalgia?

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Fibromyalgia?
« on: November 10, 2009, 11:19:55 PM » by mommyjen

Well I never thought I'd be posting here. Undecided

I am so thankful for welltellme, especially at this point in my life. I've been doing lots of reading here today. So here goes...I've been diagnosed with vestibulitis which is very frustrating to say the least since hubby and I's "relationship" had been great and healthy prior and has pretty much sunk since I've developed this. Can I be honest? This sucks. So my therapist handed me some brochures a week or so ago and one mentioned that vestibulitis can be Candida related. Hmmm. So I google vestibulitis and candida and find a testimony of woman whose vestibulitis went away after 5 DAYS on a anti-candida diet and prescription antifungal. The physical therapy I'm facing is 7 weeks of NO well you know what (on top of a few months already of abstinence), pelvic physical therapy, and a litocaine a topical numbing agent that will hopefully end this night mare. But flare ups may continue to happen for some women, and some women do not get better after the therapy and have to do heavier drugs, etc if they go the conventional route. It's all a waiting game. And yeast may have been this woman's cause but vestibulitis is complex and it may not be everyone' cure ya know?

Well by "chance" I kept scrolling down the page of aforementioned website and a woman mentions how her fibromyalgia pain subsided substantially after going on an anti-candida diet. She mentions she has the classic fibromyalgia tender points. Well that got my attention. I have had tender (actually painful) spots for years in the same places and I constantly am asking my hubby WHY they don't go away with his wonderful, faithful massaging. Infact, just recently I was asking my sister who is a massage therapist the same question and asked her to tell me if these points were muscle or lymph nodes. I was getting concerned I may have lymph node infection, cancer, I dunno, something. She felt a few and said they are muscle (phew!) and coached me on good posture. Well, after reading about these tender points, I googled to find more info. and sure enough I have them ALL! Fibromyalgia? Me? It makes so much sense, but I am sinking even lower at the thought.

I have always been tired. My mom says I was born tired. Yet with diet and supplements, I feel better today than I ever have (the fibro ladies said they felt so much better after suffering with pain for years after they did what I'm doing now, so maybe I would be worse otherwise?), but I'm still "weak" feeling and seriously have been wondering lately if I should just accept that I'm lazy because I just can't seem to work fast, hard, very long, and with ALL my might. I'm like, LORD, am I a sloth, sluggard, etc. When I exercises I am EXTREMELY sore. It is not a normal sore, I think. I did 6 minutes of a work out video a few days ago and I still cannot walk with out major pain. It was called target toning for beginners? I know a certain amount of soreness is expected, but 2 days later and my legs are still jelly and painful?

Also, I know I don't get enough sleep and that can be a symptom or even cause of fibromyalgia so I've read. Hubby and I stay up really late and we cosleep, so baby is up a few times a night. The times when we get to bed early it's wonderful, but since we are hopeless night owls and we have kids that get us up early and sometimes I have trouble falling/staying asleep, it may be time to night wean and work on better sleeping habits myself. I was gonna night wean anyway, actually, cause I need the estrogen back from cycling to help heal the vestibulitis due to dryness from the hormones involved in nursing. After our company comes and leaves here, we'll get our little guy sleeping through.

So, what is going on? Is my REAL problem yeast? Herbalmom, I read your comments on the fibromyalgia topics and you said you had the classic tender spots but you had a lot of relief from anti-candida measures but get flareups if you slip up on diet. Do you believe its fibro or yeast? Anyone else? I have an appointment in a few weeks with my ND to get nystatin for the vestibulitis and I'm gonna call her tommorrow and ask her about the fibro and see what she thinks. Help! I'm emotional and so depressed which is so NOT me. Cry

« Last Edit: November 11, 2009, 12:28:30 AM by mommyjen »
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Re: Fibromyalgia?
« Reply #1 on: November 11, 2009, 12:04:51 AM » by mykidsmom

Mommyjen, I KNOW this is going to sound way off, but it's not! Yes, candida can most definately be an issue but so much of what you describe is my husband prior to a diet change. But that diet change required a GOOD food allergy test. What so many many people don't realize is that food allergies so often cause all of these symptoms that doctor's have put names on but never get to the cause of (fibromyalgia being one). My husband has HORRIBLE food allergies but he is the last person on earth to tell you he would have ever thought that. The standard mode of thinking is, "I've never had trouble with this food, or that, etc. etc." The problem is, a food allergy won't come out in the body until the body is so overloaded it finally can't handle it anymore. Then it will come out one of two ways. Either in the skin in the form of eczema and hives or internally in the form of inflammation and pain. I would highly encourage you to get an ELISA 96 food allergy test because I would almost bet you've got some pretty hefty food allergies. Also, I would recommend you have your doctor run a SED Rate test. This is a blood test that measures the level of inflammation in your body. It's important because it can tell you a lot about what's going on inside of you. If you get that done, let us know how it turns out. I can give you some direction after knowing what that SED rate is.

hth

patti

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Re: Fibromyalgia?
« Reply #2 on: November 11, 2009, 12:18:52 AM » by mommyjen

Thank you so much Patti. Do you know if your hubby had the classic fibro tender points? Food allergies don't sound out there, but could it be a combo yeast/allergy thing? I know I'm dairy "sensitive" or maybe just lactose is my problem because I think I do okay with 24 hour yogurt. I have minor digestion issues too. I've been wanting to get the allergy test...so I guess I have a better excuse now besides more energy and optimal health.

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Re: Fibromyalgia?
« Reply #3 on: November 11, 2009, 12:22:30 AM » by mommyjen

Quote from: mykidsmom on November 11, 2009, 12:04:51 AM

Okay, you'd already answered my question above here. Hmmm. I don't have skin stuff or inflammation that I know of, but I do have pain. I hope we can get the test (tests).

« Last Edit: November 11, 2009, 12:30:14 AM by mommyjen »
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Re: Fibromyalgia?
« Reply #4 on: November 11, 2009, 12:44:24 AM » by herbalmom

I second Patti. I get SO much pain & fatigue from dairy & gluten. Do searches for dairy, gluten w/herbalmom as the user to find out more about my symptoms.

Here's a thread that should help:

Fibromyalgia: Causes & Cures

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Re: Fibromyalgia?
« Reply #5 on: November 11, 2009, 12:52:11 AM » by mommyjen

Quote from: herbalmom on November 11, 2009, 12:44:24 AM

herbalmom, do you think food allergies and the vestibulitis (inflammation of the vestibule/nerve damage) could be related too?

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Re: Fibromyalgia?
« Reply #6 on: November 11, 2009, 01:56:57 AM » by herbalmom

Quote from: mommyjen on November 11, 2009, 12:52:11 AM

herbalmom, do you think food allergies and the vestibulitis (inflammation of the vestibule/nerve damage) could be related too?

Could be- it could be basically v*ginal hives or something similar. Food allergies can cause swelling & inflammation ANYWHERE in the body. I have had times where I've eaten something & it's caused that kind of irritation.

The link below is a post that might help with another possible cause.

http://www.welltellme.com/discuss/index.php/topic,3798.msg37218.html#msg37218

After a quick read of what vestbulitis is, it sounds similar to the irritation that I'm referring to. If soaps, etc are part or all of the problem, time with hubby would make it worse- both b/c of rubbing & b/c he has soap, etc residues on him as well from laundry, body soaps, etc.

Another thing to look into is SLS. HB has posted A LOT about the problems it can cause. It could be that your only noticeable symptom is vestibulitis. Don't overlook that it could be something DH is using that's causing it or at least contributing.

Quote from: mommyjen on November 10, 2009, 11:19:55 PM

So, what is going on? Is my REAL problem yeast? Herbalmom, I read your comments on the fibromyalgia topics and you said you had the classic tender spots but you had a lot of relief from anti-candida measures but get flareups if you slip up on diet. Do you believe its fibro or yeast?

I believe that yeast/fungus & a long term mold exposure is what caused my fibro in the 1st place & when my yeast/fungus flairs up or I get exposed to mold it gets worse.

Same with my allergic foods- when i eat them, it flairs up also.

Quote from: mommyjen on November 10, 2009, 11:19:55 PM

The times when we get to bed early it's wonderful, but since we are hopeless night owls

Being a night owl is a CLASSIC sign of adrenal exhaustion. So is chronic pain. Be sure to check the threads on that as well. Also iodine & thyroid since they all go together.

BTW- nystatin if it's oral is mostly for the gut- it doesn't work throughout the body. Even a v*ginal yeast cream won't help much b/c the problem is deep within the cells & the body. You should probably look into whole body, strong antifungals. (antiyeast meds)

Gotta go for now- we're still moving & have to get it done. My internet is going to be off for a couple days so I'll get back to this this weekend.

HTH Blessings ~herbalmom

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Re: Fibromyalgia?
« Reply #7 on: November 11, 2009, 02:45:56 AM » by herbalmom

Just remembered another post that might help:

http://www.welltellme.com/discuss/index.php/topic,6841.msg71671.html#msg71671

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Re: Fibromyalgia?
« Reply #8 on: November 11, 2009, 09:50:07 AM » by hi_itsgwen

You may want to consider doing a little research on the Fiengold Diet and salicylic sensativity. The salicylates allergy can be a cause of Fibromyaligia, and the Fiengold diet is specifically designed for Fibromyalgia.

Just a thought.

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Re: Fibromyalgia?
« Reply #9 on: November 11, 2009, 10:33:56 AM » by RunAmokFarm

As a reminder, the "What's wrong with me board?" is a little different than the other boards...

"This board is being introduced as a means to allow those members who need help with recognizing symptoms and finding leads for further research on a particular illness or disease.

Each person who has a new problem or illness may start his/her own thread and once the original post has been answered to the satisfaction of the poster, it will be locked and archived in this folder.

We ask that you DO NOT post your remedies in these threads! There are places for those. This is a place to help others to find a “name” for their problem to make it easier for them to research further, search the current topics and/or create a new topic on the illness if one does not exist.

If you reply to the original post, and you happen to know the whereabouts of the thread which best addresses the poster’s needs, please be encouraged to post a redirect (URL)."

Extended information should be discussed/posted in the suggested threads, such as the Fibromyalgia - Causes and Cures thread, yeast thread, etc. If you find your topic is not covered by WTM thus far, then we would encourage you to create a new topic. (For instance, if you believe this is actually Purple-faced, blue-handed, polky-dot spleen enlargement disease, please start a new thread! Cheesy

)

By the way, some great suggestions here so far!
Jaque

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Re: Fibromyalgia?
« Reply #10 on: November 11, 2009, 12:58:14 PM » by mykidsmom

Quote from: mommyjen on November 11, 2009, 12:18:52 AM

Mommyjen,

My husband did not/does not have fibrobmyalgia. What he did have was pain popping up all over his body. He kept thinking it must be age because he's almost 50. Because others in our family had food allergies he finally relented to testing. Low and behold, we discovered his gut was a mess. He was only NOT allergic to three things. As soon as we removed as much as was feasible (since he was allergic to sooooo much) ALL of his body pain went away. It wasn't just aches. Sometimes it was severe pain like bursitis or kidney infection feeling pain. Now, if he eats anything he's allergic to the pain returns within 24hrs.

No one thinks they have internal inflammation. That's pretty standard. But anyone with pain has internal inflammation.

All that to say, I would get your SED rate tested, the ELISA done and perhaps do a candida diet for 3-6 months. Also following up on what HM and Gwen said too. Grin

patti

« Last Edit: November 11, 2009, 09:44:56 PM by mykidsmom »
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Re: Fibromyalgia?
« Reply #11 on: November 11, 2009, 02:41:53 PM » by RunAmokFarm

: PLEASE READ :

Hi ladies!

We want folks to find the solution to their health issues -- thus this particular board... but, as explained in my previous post, the "What's wrong with me" board is for quick "Try looking into this topic, or this thread" answers -- NOT for long, intricate "solution" posts.

We want to keep the detailed content in specific condition threads, as much as possible, so those searching can find information they are looking for easily and efficiently...

Patti,
I am going to use your above post as an example. Grin

This has GREAT content, and likely very helpful information... but this really should be in a "food allergy" (or even a "pain associated with food allergies") thread.

Please cut/paste this into an appropriate thread, then delete the bulk of this post's content - while including a link to the thread/threads in which you posted the info... In the long run, this will really help the site remain uncluttered and easier to navigate.

Hope that is clear!!
Jaque

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Re: Fibromyalgia?
« Reply #12 on: November 12, 2009, 04:02:38 AM » by mommyjen

Quote from: herbalmom on November 11, 2009, 01:56:57 AM

Quote from: mommyjen on November 11, 2009, 12:52:11 AM

herbalmom, do you think food allergies and the vestibulitis (inflammation of the vestibule/nerve damage) could be related too?

Quote from: mommyjen on November 10, 2009, 11:19:55 PM

The times when we get to bed early it's wonderful, but since we are hopeless night owls

herbalmom, thank you for your informative reply! We made the switch from toxic home products to natural ones more than several years ago. We use Dr. Bonner's liquid castille soap as a body wash. All our clothes are laundered in natural detergents, so I think we are okay there. I actually have to make the switch to no soap down there Embarrassed

I'm definitely dragging my feet on that one. Undecided

Also, can you heal from fibro or is at best minimized? Or, does it depend?

Thanks you for the heads up about the difference in anti-fungals. I need to research my options and the possible side effects, but at this point I don't want to spend years doing it the natural way.

The anti-fungal drugs work quickly and thoroughly, so hopefully they are fairly harmless otherwise.

Adrenals-I am currently reading Adrenal Fatigue The 21st Century Stress Syndrome. I'll keep this in mind for myself as I read through it, but I'm thinking I'll start with the allergy/candida thing and see how I feel after that before going there. It's actually a book we recently ordered because it's required reading for my husbands Nutritional Therapy class. We both are learning so much! His taking this class is partly to help get our whole family in optimal health!

Thank you again for taking the time to share a bit of your experience and knowledge with me! I am grateful.

« Last Edit: November 12, 2009, 04:49:16 AM by mommyjen »
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Re: Fibromyalgia?
« Reply #13 on: November 12, 2009, 04:18:59 AM » by mommyjen

Quote from: hi_itsgwen on November 11, 2009, 09:50:07 AM

Thanks Gwen! I'll check into the allergy thing. Hopefully an allergy test will help figure out if I need to eliminate any foods from my diet. A Restrictive Diet sounds a bit scary at this moment, but I will check it out. Kiss

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Re: Fibromyalgia?
« Reply #14 on: November 12, 2009, 04:28:51 AM » by mommyjen

Quote from: mykidsmom on November 11, 2009, 12:58:14 PM

Quote from: mommyjen on November 11, 2009, 12:18:52 AM

Mommyjen,

My husband did not/does not have fibrobmyalgia. What he did have was pain popping up all over his body. He kept thinking it must be age because he's almost 50. Because others in our family had food allergies he finally relented to testing. Low and behold, we discovered his gut was a mess. He was only NOT allergic to three things. As soon as we removed as much as was feasible (since he was allergic to sooooo much) ALL of his body pain went away. It wasn't just aches. Sometimes it was severe pain like bursitis or kidney infection feeling pain. Now, if he eats anything he's allergic to the pain returns within 24hrs.

No one thinks they have internal inflammation. That's pretty standard. But anyone with pain has internal inflammation.

All that to say, I would get your SED rate tested, the ELISA done and perhaps do a candida diet for 3-6 months. Also following up on what HM and Gwen said too. Grin

patti

That is unbelievable. Can he eat more foods now? Wow. Planning on the Elisa and Candida diet and anti-fungals for now. This last pregnancy I had re-occuring yeast infections, so I'm thinking I may have some yeast issues. I've been on anti-biotics several times without accompanying probiotics, plus I have some other Candida overgrowth symptoms (that could also be allergy symptoms Undecided

).

Thanks SO much Patti!! You are such a huge blessing here at WTM!

« Last Edit: November 12, 2009, 04:47:53 AM by mommyjen »
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Re: Fibromyalgia?
« Reply #15 on: November 12, 2009, 04:43:12 AM » by mommyjen

Just wanted to say that I feeling much better emotionally today. Kind of hopeful and excited even at the possibility of feeling better. The thought of having a chronic condition is really strange for me though. Huh

I'd like to be totally well in time.

One thing I realized today was how odd it is that wearing a bra gives me muscle pain right where the band is. This has been the case for as long as I can remember not matter how loose (with in reason) I wear them. Blah. I'll see the ND in the next few weeks and will update then. Any other thoughts are welcome!

THANK YOU for the great information.

« Last Edit: November 12, 2009, 05:19:05 AM by mommyjen »
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Re: Fibromyalgia?
« Reply #16 on: November 12, 2009, 10:25:29 AM » by mykidsmom

Quote from: mykidsmom on November 11, 2009, 12:58:14 PM

Mommyjen,

My husband did not/does not have fibrobmyalgia. What he did have was pain popping up all over his body. He kept thinking it must be age because he's almost 50. Because others in our family had food allergies he finally relented to testing. Low and behold, we discovered his gut was a mess. He was only NOT allergic to three things. As soon as we removed as much as was feasible (since he was allergic to sooooo much) ALL of his body pain went away. It wasn't just aches. Sometimes it was severe pain like bursitis or kidney infection feeling pain. Now, if he eats anything he's allergic to the pain returns within 24hrs.

No one thinks they have internal inflammation. That's pretty standard. But anyone with pain has internal inflammation.

All that to say, I would get your SED rate tested, the ELISA done and perhaps do a candida diet for 3-6 months. Also following up on what HM and Gwen said too. Grin

patti

).

Thanks SO much Patti!! You are such a huge blessing here at WTM!
[/quote]

Yes, he can eat many more now. In the beginning he was allergic to so much we couldn't cut out all his allergens or he'd literally starve. We took out the ones that were considered the most harmful and worked from there. We'll retest him at the one year mark and check our progress. He probably has at least another year if not a little more before we will be able to say his body is healed and he can eat most stuff safely again. Eggs and dairy will be several years before they'll be "safe."

Everything you listed points to candida and allergies. Do a search on the ELISA test and there will be a link to their website for a requisition form to take to your doctor. On the same req form as the ELISA is a candida antigen test. They can test you for internal candida. I think that test was $89 in addition to the ELISA cost.

patti

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Re: Fibromyalgia?
« Reply #17 on: November 12, 2009, 11:56:22 AM » by floydian

Recently, I got to spend time w/ my midwife who was assisting my SIL give birth. She's an older midwfe w/ years and years of experience. I enjoy picking her brain about various health related subjects. One thing I asked her about was fibromyalgia. She said that she believed it was related to the body being too acidic.

I believe that an alkaline body discourages fungas of all types.

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Re: Fibromyalgia?
« Reply #18 on: November 13, 2009, 06:58:35 PM » by lotsaboys

Diet is one of the biggest keys to successfully treating Lyme as so many foods feed/irritate the inflammation and yeast. That coupled with an antibiotic regime and good supplements is what made all the difference in my friends and family members with Lyme.

I could write much more but if you have ?'s feel free to pm if ya want.

I have several resources I could point you to.

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Re: Fibromyalgia?
« Reply #19 on: November 13, 2009, 11:50:43 PM » by mommyjen

Quote from: floydian on November 12, 2009, 11:56:22 AM

Flyodian, thank you for that! I have read so much conflicting information about the whole acidic/alkaline debate. It's so confusing and there is impressive information on both sides. Undecided

I know that being one or the other is conducive to having certain baby genders, and I have all boys, so if boys result from being to acidic then maybe I am. Cheesy

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Re: Fibromyalgia?
« Reply #20 on: November 14, 2009, 12:02:39 AM » by mommyjen

Quote from: lotsaboys on November 13, 2009, 06:58:35 PM

mommyjen, have you considered Lyme Disease? All your symptoms are classic and, unfortunately I know them all too well because of having quite a few close friends and family with it.

Lyme is VERY tricky to diagnose as the spirochete bacteria are SO evasive, but if a Western Blot test is done at a good laboratory that a Lyme Specialist trusts, you can usually get accurate results. My MIL and BIL and a close friend all got negative tests at a regular Dr. but later were positively diagnosed by getting it done right.

I'm so glad to hear that you are feeling better and more positive so I hate to throw another big thing out there for you to think about. I just couldn't keep quiet after reading your story.

Diet is one of the biggest keys to successfully treating Lyme as so many foods feed/irritate the inflammation and yeast. That coupled with an antibiotic regime and good supplements is what made all the difference in my friends and family members with Lyme.

I could write much more but if you have ?'s feel free to pm if ya want.

I have several resources I could point you to.

Oh, your so sweet lotsaboys! Yeah, my brain is about fried right now. Ecc 12:12 comes to mind! ~And further, by these, my son, be admonished: of making many books there is no end; and much study is a weariness of the flesh. Cheesy

I don't know anything about Lyme's disease except from your post and that you can get it from ticks. Huh

THANK YOU for your offer and I would love to have anything you think would be informative and helpful. Thanks! Kiss

« Last Edit: November 14, 2009, 12:07:19 AM by mommyjen »
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Re: Fibromyalgia?
« Reply #21 on: November 14, 2009, 12:15:26 AM » by mommyjen

As I've been reading some about the Candida/Fibro. connection something stood out to me. Candida in the sinuses can cause nasal congestion and dryness. No matter if I go off dairy, I am always congested and dry! Kinda like there is pressure in my sinuses, but no mucous. I have the worst sniffer, too. Really, it's the weirdest thing but I can't smell very well! Good be allergy related?? Sinusitis = Inflammation of the sinuses. Also, I recently discovered that my zinc levels are low, so contributed it to that, but am rethinking this. Wow this gets confusing. Roll Eyes

Candida and the sinusitis connection
http://www.endfatigue.com/health_articles_r-s/Sinusitis-actually_a_yeast_infection.html

« Last Edit: November 14, 2009, 12:28:42 AM by mommyjen »
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Re: Fibromyalgia?
« Reply #22 on: November 19, 2009, 02:39:19 PM » by lotsaboys

Quote from: mommyjen on November 14, 2009, 12:02:39 AM

I don't know anything about Lyme's disease except from your post and that you can get it from ticks. Huh

THANK YOU for your offer and I would love to have anything you think would be informative and helpful. Thanks! Kiss

Have you checked out the Lyme thread on here?: Lyme Disease: Causes, Testing, Diagnosis & Treatments

Most folks who have symptoms like yours wouldn't begin to think of Lyme because it is so hard to diagnose and if you go to a Dr., that is not going to be something they will most likely think of either. Lyme is a co-infection disease so a victim is diagnosed with a million things which they try to treat. When all along, behind the scenes, the Lyme bacteria isn't being killed at all and they are never truly helped.

I also suggested a book on the Lyme thread that we've found very helpful and informative, "The Top 10 Lyme Disease Treatments" by Bryan Rosner

Basically, and unfortunately, antibiotics are really the only way to kill LD. Of course natural antibiotics, supplements, diet and such are very important to successful treatment too.

I truly hope this helps you. Kiss

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Re: Fibromyalgia?
« Reply #23 on: November 23, 2009, 10:58:09 PM » by mommyjen

Quote from: lotsaboys on November 19, 2009, 02:39:19 PM

Quote from: mommyjen on November 14, 2009, 12:02:39 AM

I don't know anything about Lyme's disease except from your post and that you can get it from ticks. Huh

THANK YOU for your offer and I would love to have anything you think would be informative and helpful. Thanks! Kiss

Thank you lotsaboys. I looked into lymes disease and there are several symptoms that I don't have like joint pain, but as I understood it you can have only a few symptoms and still have it? We are gonna go the antifungal/candida route first, but I will keep LD in mind if my symptoms don't improve. Thanks again!

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Re: Fibromyalgia?
« Reply #24 on: November 23, 2009, 11:22:32 PM » by mommyjen

I saw my ND today! Gotta love a Dr. that listens to your story and research findings and asks you what your gut feeling is. Kiss

She agreed that I have many candida symptoms and has experience with the fibromyalgia/candida connection. She offered to do a $30 dollar stool or blood test, but both of us were confident of Candida, so we skipped that. She said she could officially diagnose me with fibromyalgia, but that she would rather treat the cause. Also, a diagnosis can be a negative when applying for insurance, so it wasn't necessarily to my benefit. So, she prescribed me the candida diet, diflucan (200 mg for 6 weeks), and a probiotic. I'm hoping to feel tons better, but I am waiting till a week or so to start, when mother in law is done visiting. ND did think allergy testing was good idea. When we have the money, we will do that. I wish we could do it now, but it should (hopefully) just be a month or two till that's feasible. She said 275 for the Elisa 96 from Bio-Teck. That seems higher than what I remember Patti mentioning. Maybe the price is different with each practioner? I know that avoiding allergies when pregnant is important to the help baby in the womb not develop similar food allergies as well, so we want to find out food allergies before our next blessing for that reason as well. Baby started sleeping through the night on his own two weeks or so ago (the day of my initial post!) and I don't feel a bit more rested. Tongue

So, for me it's all about getting to bed early rather than uninterupted sleep (within reason, once or twice a night with baby conveniently near). BUT, due to baby's sleeping through the night, my cycles are starting again, so we have to be careful not to conceive as diflucan is disastrous to a new life especially and in the first trimester as well. So we are gonna get me in tip top shape and then get back in the baby game and try for a girl. Wink

Thanks all for your help. Thoughts? Suggestions?

« Last Edit: November 23, 2009, 11:32:26 PM by mommyjen »
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Re: Fibromyalgia?
« Reply #25 on: November 23, 2009, 11:58:00 PM » by mommyjen

Quote from: mommyjen on November 23, 2009, 11:22:32 PM

I saw my ND today! Gotta love a Dr. that listens to your story and research findings and asks you what your gut feeling is. Kiss

Thanks all for your help. Thoughts? Suggestions?

Oh, I forgot. ND also said that the number 1 reason people come to see her is fatigue and Candida is often the cause. I know my hubby has blaring candida overgrowth symptoms. There is no doubt he would benefit from a round of antifungals, so he's next! My son has major candida and allergy symptoms as well and for him we will probably do the candida test first and treat him with antifungals accordingly and ELISA. Hubby agreed that this tax refund we are gonna get our family healthy!!

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Re: Fibromyalgia?
« Reply #26 on: November 24, 2009, 01:16:35 PM » by lotsaboys

Good to to hear you have a plan and an understanding Dr.! I'm sure clearing up Candida will help you tons. Blessings!

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Re: Fibromyalgia?
« Reply #27 on: November 24, 2009, 05:28:53 PM » by mykidsmom

Mommyjen,

I don't know if anyone has ever shared this or you know it but diflucan is both unsafe and not terribly effective against yeast. It has a 30% success rate in overall studies and is so hard on the liver that it is recommended by the FDA that liver tests be run monthly on anyone taking it. My doctor won't even prescribe it he considers it so worthless and risky (my MD that is). You might want to consider instead just using nystatin and doing the full candida cleanse/diet. I think you will find them much more effective without having to worry about side effects.

It also sounds like you may have some adrenal fatigue going. It might be worth you reading through the AF thread on here. Also, have you had your vit. D levels checked?

Just more things for you to consider. But definately a vit. D level is a worthwhile check.

patti

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Re: Fibromyalgia?
« Reply #28 on: November 24, 2009, 05:56:44 PM » by mommyjen

Quote from: mykidsmom on November 24, 2009, 05:28:53 PM

Patti, I haven't had my D levels checked yet, but I'm doing 10,000 IU a day for a bit and then will have my levels checked in whatever time frame they say to on the Vitamin D council website. I'm taking double what they recommend without testing but other sources are okay with that dose and so am I. I read how much better you feel now that your levels are up (after being so low!) so that was inspiring. About the diflucan...I'm getting mixed reviews. My ND thought it was okay and she said if someone has Candida really bad she prescribles both Diflucan AND Nystatin! She seems to up on things. Huh

What about this Doctors experience? She has had huge success with diflucan and equates its toxicity as less than tylenol, if I remember right. Ah, here it is:

Quote

In addition, Diflucan can cause liver inflammation, although this is uncommon (Tylenol is more likely to cause liver problems), and I have not seen it be a significant problem in the more than 3,000 patients I've treated.

http://www.endfatigue.com/health_articles_f-n_2/Infections-candida_eliminating_yeast_fungal_overgrowth.html

I'm taking milk thistle phytosome for liver protection during the diflucan as well. I know my ND would do Nystatin if I wanted, but I'm not convinced. Undecided

Adrenal fatigue is something I'm looking into, but I'm thinking if I take care of yeast and allergies (I'm so bummed we have to wait on that) first and see how I'm doing after, then I'll go from there.

What would your plan be like if you were in my shoes? Thanks Patti!

***modifying because the above article does mention that some people are resistant to diflucan. Maybe that's why it has the bad rap? Same with Nystatin to though. Maybe the confusion is just not paying attention to resistance of either and adjusting antifungals as necessary?

« Last Edit: November 24, 2009, 06:17:45 PM by mommyjen »
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Re: Fibromyalgia?
« Reply #29 on: November 24, 2009, 09:38:03 PM » by mykidsmom

Quote from: mommyjen on November 24, 2009, 05:56:44 PM

What would your plan be like if you were in my shoes? Thanks Patti!

At this point I would do nystatin at 500,000 IU's 2 tabs daily for at least 60 days. Do a low sugar/anti-candida diet for 60 days. Continue the Vit. D (although I noticed an immediate change so you may not have been that low - would depend where you live). If you've had multiple children I would check progesterone as low levels will cause extreme fatigue. But the #1 thing we have found that causes severe fatigue in this house (as in, I can barely crawl out of bed and function through the day) is a gluten allergy. Both my son and I can't hardly function if we've had gluten. I've been suffering all day today after yesterday. Tongue

As soon as you can get the ELISA done, get it. And it's not $200+ unless you have insurance. If you self-pay it is $169. If you have insurance it's $352. If you go through an ND that has an account with US BioTek it's $137. If your chiro is charging more then it's charges she is adding. Those are flat charges that apply to everyone.

If you do 60 days of anti-candida stuff and you don't feel significantly better then that's not your problem.

hth

patti

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