Sensory Integration Disorder? Please Help!

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Re: Sensory Integration Disorder? Please Help!
« Reply #30 on: February 02, 2007, 11:05:24 PM » by mamaoffour

Aussieinamerica: i can totally relate!! I always wonder what situations need to be dealt with and which ones don't. I have to questioned myself all day long about what Noah can control and what he can't control. Here are some of the things that we require Noah to do no matter how hard it is for him:

absolutely no fits no matter what the situation(we tell him to calmly ask for help in any situation, even if it is something that bugs him.

no whinning

no hitting

no lying

no outright disobeying

respect each other at all times

cleanup when told to

no complaining

On matters that he reacts to sensitively, we pull him to the side and calmly(this is very hard to do when he overreacts to something we find very silly) tell him he needs to gain control. He is getting better at this, but we still have a long way to go. On issues with clothing, shoes, socks, jackets, hats, and etc, we simply tell him that we know it bothers him, but it will just be for a short peroid of time that he will have to wear them. For example: if we go to the store we always take off his jacket and hat when we get inside. We tell him way before we even put his jacket or hat on, that it will come off when we get to the store. This has helped us so much!! Talking things out before we do things is the best way for us so far!! As far as the shoes go, we try to find the most comfortable pair of socks that we know. Shoes have to stay on no matter what!! We actually reward him if he doesn't whine about his shoes being on. He gets special "points" for handling sesnsitive situations, and when he gets 10 marks, he gets to have a special treat. This is helping alot with his sensory problems. hope this helps.

Misty Grin

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Re: Sensory Integration Disorder? Please Help!
« Reply #31 on: February 02, 2007, 11:09:54 PM » by mamaoffour

Quote from: aussieinamerica on February 02, 2007, 05:04:17 PM

mamaoffour -
What an amazing child!! Reading at 2! You probably need to do some school with him just to stop him from becoming overly bored

I'm so glad he has a mommy who is willing to do that with him.

Dr. Frank Lawlis did talk about the distractions that lead to thinking about this and then that and on and on...like you described with the truck going by. I will have a look and see if he said anything about how to help that.

I am also going to contact my sister in law and see what supplements she is giving her son. I know there was something in particular that seemed to really help him to be more calm and so highly strung.

Stacy

AussieinAmerica: I would appreciate that. Noah was so high strung today and that was with no sugar!! I just don't get it sometimes. Anyway, Noah's early reading has baffled everybody!! Of course, strangers say, "oh, he must be a genius!" I don't think he is a genius, but he will really require one smart mama later on. Did I mention I was horrible at Algebra? Sad

At this rate he will be doing chemistry experiments by age 5!! LOL

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Re: Sensory Integration Disorder? Please Help!
« Reply #32 on: February 02, 2007, 11:18:56 PM » by mamaoffour

Quote from: blessed213 on February 02, 2007, 10:34:00 AM

mamaoffour,

Keep up your hard work! I just read this thread and I remember all the hard work, tears, and heartache we had with our oldest. He had behavior problems, extremely intelligent, and very demanding of me. The first 5 or 6 years were the worst for us. I did a lot of research and found ways to work with him to improve his health and condition.
My family, too, thought we were making too much of all of it. They just didn't understand, as they didn't see the day to day struggles firsthand.
We feel blessed that God led us to the information that He did, and we did not have vaccines for our other children and have made tremendous dietary changes in our family. Our oldest, now 26, is healthy and well adjusted. He can function well in any setting, has a wonderful wife and children, and is still extremely intelligent.
His wife dreads the thought that they may have a child like he was, as we believe that the tendency may be hereditary. Grin

You are the best qualified expert on your own child. You are his best advocate. I will be praying for you.

blessed213

Thanks so much for your support. Your right about the struggles with just everyday life!! Some days are so hard for me to deal with. I just have to go in my room and cry it out with God!! I do this alot and he helps me when I think that I'm not cut out for this role!! My parents pretty much failed me growing up, so it's really easy to get angry with my parents for not preparing me for motherhood. I know I have come a long way!! Praise God for that!! He is my strength, my shield, and my Heavenly Father. Without him I would not be able to raise my children the way i do today. Can you tell me some of the helpful supplements you used for your child? I have ordered Noah some:EFA's, magnesium, Zinc,B Complex, Calcium, and some candida meds. Not sure if I'm missing something here. Oh yeah, he is taking Natural Cellular Defense right now. Any suggestions would be great.

Misty

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Re: Sensory Integration Disorder? Please Help!
« Reply #33 on: February 02, 2007, 11:37:38 PM » by mamaoffour

Kamom: Thanks for your post. We have decided to keep therapists out of Noah's life. I just don't want someone else trying to figure out my child when I know him better than anyone else. Ya know? As far as him just being smart, I think he is very smart, but has neurological problems attached. My husband and I have come to the conclusion that some of his behaviors are not normal. We have used all the proper disciplinarian actions and still have some issues that are not resolved. That's where all the sensory problems come into play. He is the sweetest kid ever!! He tells me he loves me all the time and is very polite to adults. I just know "deep down" that he needs my help and I am willing to do whatever it takes on my own to help him overcome these problems. For one thing, he has been on a gluten free and casein free diet for about 3 weeks now, we have also cut out all processed sugars and foods as well. We don't eat anything that is processed. We started this because of his hyperactivity;I know I have heard other people say that gifted kids can be very hyper, but Noah's is abnormal at times. Sometimes I look into his eyes and it's almost like he's on drugs or something. He is so worked up he can't even make eye contact with me!! And that's with out any processed or sugary foods. He tends to flap his arms alot, spins in circles constantly, rolls on the floor uncontrollably, bites his lip, and is always rolling his head from side to side. I know some hyperactivity is normal, but this is not to me. This has brought me to tears to write about this. I know if I would have been a little more informed, he would never have neurological problems, and wouldn't have sensory issues at all. i would love to handle this on my own, but I need everyone's input on how to do this. I know I can with God's help,but it will be a long road ahead.

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Re: Sensory Integration Disorder? Please Help!
« Reply #34 on: February 03, 2007, 12:09:27 AM » by Lavender~Rosemary

mamaoffour -
I have been looking at The ADD Answer by Frank Lawlis and couldn't find anything that specifically addressed the distractability from noises..but there are a few things of interest I wanted to share. I know your son doesn't have ADD but there are some things that are common....
(I will give my sister-in-law a call in the morning and see what I can find out from her about supplements...and anything else).

One suggestion he had was to eliminate any toxins from the child's environment and diet. These can aggravate symptoms.
Environmental toxins include things like: newly painted surfaces, perfumes, gasoline or petroleum products, pesticides, cut grass or harvested crops, household chemicals such as cleaners, gas stoves. He says that because the immune systems of these children are so sensitized they are overactive to many conditions in their environment, eg. skin is so sensitive that the seams and tags from their clothing bother them immensely. He suggests going as far as having your plumbing checked and water tested for lead. Also find alternative household cleaning products and pest control.

I'm not sure how you go about having your plumbing checked but I would like to find out - if anyone knows please tell us

The most common food substances that cause irritation are:
Artificial colors and preservatives. Especially red and yellow food coloring.
Processed milk ands milk products ( so going casein free is a great idea, like you are already doing)
Wheat products that are not wholegrain
Oranges and grapefruits
MSG

Somethings he suggests that will benefit the child are :
*calcium and Magnesium - they work together. calcium helps the neurotransmitters work correctly. Magnesium magnifies the effects of calcium. When 50 ADD children were given 200 milligrams of magnesium a day their hyperactivity lessened.
*B6 - enhances the effects of vitamins and minerals and helps combat most diseases. lack of B6 is thought to contribute to a wide range of health and mental problems some of which are: seizures, autism, depression, headaches, memory, agitated behavior, sleep difficulties and anxiety.
- You can find B6 in these fruits - grapefruit, guava, kiwi, mango, orange, papaya, persimmon, rose hip (he did say grapefruit and orange could aggravate symptoms - so I don't know about those

)
- Also find B6 in fortified cereals, bananas, garbanzo beans, baked potato, chicken breast, oatmeal (fortified), pork loin(lean only), peanut butter, wheat bran and walnuts.
*B12 - Beef, fish, eggs, rice cheese, tofu, fish and beans.

I am don't know very much about this. I'm just reporting what I have found. If anyone else can correct or elaborate please do Grin

Hope this helps.
Stacy

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Re: Sensory Integration Disorder? Please Help!
« Reply #35 on: February 03, 2007, 04:31:49 AM » by ILoveGodsWisdom

NATURAL CELULAR DEFENCE (NCD)

Otherwise known as liquid zeolites are great for detoxing chemicals, toxins and heavy metals. Anyone interested in treating their child for Autism using NCD should check out these links on sucess stories with NCD and how to use it:

http://zeoliteautismstudy.com/profile-vadekar.html

www.drzeolitedetox.com

http://bodyburden.onezeo.com/

www.cancer-prevention.net

www.treeoflife.com (Gabrielle Cousins recommendations on dosage)

NCD is a formula of zeolites suspended in a liquid so small it can enter into our cells. It has a strong positive charge which pulls out the toxins from our cells and captures it in its cage like structure and is then urinated out of our body safely.

I hope this will be helpfull to someone.

Tracy

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Re: Sensory Integration Disorder? Please Help!
« Reply #36 on: February 03, 2007, 10:35:37 AM » by ladyhen

Sounds like you're on the right track with supplements. I can't think of anything else I would try.

My ds seemed to need a lot of B complex at times. We could tell this because he would crave either meat or popcorn with nutritional yeast on it. I guess the stress of the day wore out his system.

I agree with talking with your Noah and acknowledging his discomfort. We did that all the time. We would tell our ds what we expected to happen that morning (or afternoon or that particular outing) and tell him what variables could occur. He had things worked out in his imagination a certain way and, if things varied from that it would put him into a fit. So, discussing all possiblities we could think of in a calm setting and calm manner seemed to help the day go smoother. It seemed to 'give the variables permission', if you understand that.

We removed as many irritants from his surroundings as we possibly could. These really seemed to help. Clothing was a real big issue, chemicals and food additives were right out, and we were vigilant to keep home as safe and secure for him as we could.

I hate to admit this, but when our next child was born I would often watch her sleep as I held her and wondered if she were retarded. She was so peaceful, so easy. so NORMAL! The intensity of dealing with our ds had become my 'norm'.

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Re: Sensory Integration Disorder? Please Help!
« Reply #37 on: February 03, 2007, 11:12:10 AM » by healthybratt

Quote from: kamom on February 02, 2007, 02:09:56 PM

I read through this thread and have some questions. Not accusingly, but why do you want to give it a label, whats wrong with being smart for his age?

There is abosolutely nothing wrong with being smart, but the sensory perception issues are usually a sign that something is wrong. The fact that he is extremely progressed in his intellect in tandem with his other symptoms is just another sign that something might be wrong. If diet changes and other things might help improve his sensory perception, obtaining this "label" could help mom to find more information on said condition.

If you wanted to find treatments for chicken pox, it would sure be eaiser to look for books on chicken pox, than it would be to look for a book about kids with funny red bumps. A label in many situations is just a way to identify like symptoms to make it easier for people to find and understand information.

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Re: Sensory Integration Disorder? Please Help!
« Reply #38 on: February 03, 2007, 05:11:34 PM » by mamaoffour

Stacy: Thx for the information. I just got the vitamins I ordered yesterday; here's what I ordered: Magnesium, Calcium, B-Complex, Zinc, Essential fatty Acids, Probiotics(since he can't have my kefir anymore) Vitamin C. This morning he woke up and was alot more focused than I have seen him in a long time. Surely the Mag and the B-Complex haven't already starting working, it really seems like they have.

About the lead, we really need to get our pipes checked as well. Yikes!! I didn't even think about that. We live in a house that is 80 years old!! We have had some of the plumbing replaced but not all of it. I will look into that for sure!

Thanks for all the helpful info!! Be Back soon.....going to cook dinner.

Misty

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Re: Sensory Integration Disorder? Please Help!
« Reply #39 on: February 03, 2007, 07:04:47 PM » by Lavender~Rosemary

I have not been able to get in touch with my sister-in-law yet. I left a message and she should give me a call soon...In the meantime, my brain finally remembered the supplement she had been giving her son that really helped him a lot. It is called Gaba
I had not heard of it before.
I looked around online and found this link that talks a little about it:
http://www.raysahelian.com/gaba.html
It is an amino acid that functions as a neurotransmitter in the brain. It is supposed to help with relaxation. I know she believes that it helped her son calm down quite a bit. She was raving about it!! Cheesy

I read that some body builders take it to stimulate growth hormones but that is does not work very well in that way.
Here is another link on it: http://www.vitaminstuff.com/qa/gaba-qa-index.html
Have you heard of it?
Stacy

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Re: Sensory Integration Disorder? Please Help!
« Reply #40 on: February 03, 2007, 09:48:08 PM » by Lavender~Rosemary

Well, I had a nice long conversation with my sister-in-law.....
She has changed from giving the gaba supplement alone to giving him something called True Calm. I found that you can actually buy it on amazon.com It is made by a company called NOW. It has gaba in it but also includes some other things such as: magnesium, B6 and Valerian root.
Eliminating casein from her sons diet also helped in an amazing way. I did tell her about your son's symptoms and she said that he sounded like he may be on the spectrum (but the spectrum is huge). She thought he sounded very high functioning.
For sensory issues she told me that physical works best...someone suggested body brushing and then deep pressure - there is some good information at this link: http://www.autism-pdd.net/testdump/test68.htm
Also body brushing and then joint compression is good - Here is a link to the brushing/joint compression technique: http://www.slc.sevier.org/sibrush.htm I am going to try it out on my daughter too.
You are in my prayers and you search for ways to help your son. I hope you find some really great things that will help. I have heard of a number of cases where children have worked through this and come out on the other side. In fact a friend of our family whose son was diagnosed with autism worked very hard with him at a young age. After a few years they moved to a different town, when the doctor there examined him he asked the mom, "Who diagnosed this kid with autism?". He had come so far that he was no longer recognizable as "autistic". So,, there really IS hope! Especially with a mother like you who is doing her research now while he is so young.
Stacy

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Re: Sensory Integration Disorder? Please Help!
« Reply #41 on: February 03, 2007, 11:09:05 PM » by mamaoffour

Stacy: Thanks for the links. I will check them out. That's very interesting about the skin brushing and compression of the joints. We have actually been giving Noah massages and lightly rubbing his skin with our fingers. Now he asks me to rub his legs and will be still for me to do it. This is one way I can help him calm down. Now when he gets a little hyper and I need him to calm down, I will just tell him that mama is going to give him "a little massage" and he will be still and let me.

I appreciate all you have done and the research you have helped me with. You don't know how much it means. Grin

I will keep you updated on what else we find out and how Noah's doing.

Misty

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Re: Sensory Integration Disorder? Please Help!
« Reply #42 on: February 04, 2007, 06:08:02 PM » by famofour

Wow!!! You have been doing your research. Sounds like Noah is blessed to have parents like you. I think any time you feel like something is wrong with your child, you need to follow up on it. No one knows your child like you! It looks like you have gotten some great advice on this site!!

I came to this website looking for something about excema for my little girl when I came across your story. I am an occupational therapist O.T. As someone mentioned earlier an O.T. is trained in sensory integration disorder (now called Sensory Processing Disorder or SPD) I understand you do not want a therapist coming into your home. If you ever chose to go to a therapist, you can chose what setting you would like to work in. Therapists see children at home, schools, daycares, outpatient clinics, or in private practices. As far as your concern about a therapist judging your discipline style, I have to say, I also believe in spanking. I am very happy when I go into a child's home and find that there is some structure and discipline. It is not our jobs to judge families but to be supportive and offer ideas. O.T.s are trained to be client centered or family centered, meaning, we address the concerns/goals of the parents and child. Therapists should and are taught to treat the parent as the expert that they are. You decide what part of your life you want them involved in. If you don't need help with discipline there is no need to address it. That is not to say that all therapists practice this way. It is important to remember that therapists work for you. If you are not happy with the services they provide, move on until you find a therapist that is a good fit for your family. O.T. services can be delivered several different ways and as I said, in several different settings.

Before you write off therapy completely, I would encourage you to look into the benefits a good therapist could offer you and your family. There are pediatric therapists that have spent years and years learning about these issues and working with children with a wide range of problems. They could offer you support and answers that you may otherwise spend YEARS searching for. If you went to an O.T. and decided that direct services were not right for your son, you may still walk away with a home program, some areas have support groups or times when families can connect with each other and you could ask for suggested reading to help you find answers. Early diagnosis can be a blessing. The earlier the diagnosis is made, the sooner treatment can begin and the sooner, the better. Children's brains are still developing and treatment maybe more effective early on. I just want you to know there is help available out there if you decide you want/need some and it does not have to be delivered in your home. I know therapy can be expensive and scary but you could always try one or two visits and decide from there. I you decide to see a therapist, I would encourage you to find a pediatric therapist with a lot of experience.

I have recently read a wonderful book Sensational Kids by Lucy Jane Miller. She is the queen of SPD and has devoted her life to studying and treating this disorder. I think it may offer you a lot of insight and maybe answer some of your questions. The nice thing about this book is it is easy to read, gives good clear examples of the different forms of SPD and discusses children who have SPD and other disorders (ADHD, autism. . .) You might also check out http://www.starcenter.us/ the star center is run by Lucy Miller. I am confident you will make the right choices for you and your son wheather that involves therapy or not. With God on your side, you can't go wrong! I will be praying for you and your family.

Sue

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Re: Sensory Integration Disorder? Please Help!
« Reply #43 on: February 05, 2007, 04:55:34 PM » by mamaoffour

famoffour: Thanks for that information on therapists. We are praying about this one right now. I have ordered quite a few books on Sensory Processing(Integration) Disorder. i'm just going to read as much as I can and find my own ways of dealing with Noah. So far I have read Raising A Sensory Smart Child, it was really helpful in dealing with some of Noah's issues. I'm really not sure if we have the finances for therapy either. It all depends how much the insurance would cover.

I figure I'm his mother and know him best; if it gets too much for me to handle, then we will make arrangements for him to see someone. Right now we are giving it to God, and so far, he has been very good to us. This has become my hobby now literally!! I love to research and get answers for my family. I will only give Noah and the rest of my family the best. It's really hard work, but I know now that I can do it with or without a therapist. Thanks for posting. I really apperciate it. Please pray for us in these hard times.

Misty

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Re: Sensory Integration Disorder? Please Help!
« Reply #44 on: February 05, 2007, 05:57:12 PM » by Lavender~Rosemary

I'm so glad you are finding so much good information. I'm sure you will continue to see improvement in Noah.
Stacy

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Re: Sensory Integration Disorder? Please Help!
« Reply #45 on: February 05, 2007, 11:30:40 PM » by mamaoffour

Aussieinamerica: I didn't really think I would get too much response on this topic!! I was sure wrong!! Just goes to show you how many people might actually be having the same kind of problems with their children too. Scary though huh?

Today was a rough one for my Noah. He was tired, cranky,sick, and just not himself today. It was also an extra long day for mom as well. Please say some prayers for me tonight. Sometimes a feel like we are back at square one again. I'm thinking that he had some detox symptoms too from the Natural Cellular Defense. Somedays he seems almost like he is getting a lot better, and then he will have extremely hyper days like today. I have to keep him busy all day long when he is like this!! I get nothing done as far as "house work" goes. Oh well, the laundry will still be waiting for me tomorrow, my kids will not.

Misty

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Re: Sensory Integration Disorder? Please Help!
« Reply #46 on: February 06, 2007, 10:39:05 AM » by ladyhen

My ds with all the difficulties as a young child is now nearing 26 years old. He called me yesterday for reassurance and 'mothering'. He has a bit of a virus and doesn't feel good; his 2 year old had it last week. The intensity of the mother-child relationship with these high-need children diminishes, but I don't think it ever goes away. Where would he be, I wonder, had we not met his needs as a child?

just a thought

Keep at it, Misty.

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Re: Sensory Integration Disorder? Please Help!
« Reply #47 on: February 06, 2007, 12:37:22 PM » by Lavender~Rosemary

Sorry you had a hard day. You will be in my prayers.
Stick with it
Stacy

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Re: Sensory Integration Disorder? Please Help!
« Reply #48 on: February 06, 2007, 01:21:16 PM » by abbilynn

Yep, life's a real battle sometimes! SID is never consistent. On one day, off the next. Two of my sons have SID. One hypo, one hyper. It's like an onion. You deal with one layer, and then you realize there are many more layers. Tons of pieces to the puzzle! I've had my head stuck in researching all of it for the last year and I know there's still sooooo much for me to learn! Shocked

But I will say, that it has caused me to trust and rely on the one who created them, and it has been the most amazing experience to see what He alone has done. Totally incredible. Pray for wisdom b/c the Lord gives abundantly to those who seek it out!! And hang in there. As you start peeling back the layers, the bad days become less and the good days become more. Grin

abbilynn

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Re: Sensory Integration Disorder? Please Help!
« Reply #49 on: February 06, 2007, 03:42:47 PM » by mamaoffour

blessed213: I'm sure that will be me too one day. Looks like I will be at the computer all day today. I think there is some ingredient in Noah's supplements that is causing a reaction again. He has been very hyperactive today. Two days in a roll for him. I have to look into every ingredient in his supplements to see if I can track it down. I think I saw "fructose" and "natural flavors" in one of his vitamins. I'm going to call the manufactor and find out exactly what "natural flavors" contain. I also found "Maltodextrin" in his probiotic. Is this a form of gluten? I loaned out my Unraveling The Mystery.....book to a friend.

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Re: Sensory Integration Disorder? Please Help!
« Reply #50 on: February 06, 2007, 03:47:44 PM » by mamaoffour

Quote from: abbilynn on February 06, 2007, 01:21:16 PM

abbilynn

abbilynn: You are so right about that!! I swear Noah has acted almost normal somedays!! The last two day he has completely reverted back to the sensory progmatic child. I'm pretty sure he has reacted to something in one of his vitamins. I guess it's back to the blackboard again..........Research Research Research.

Anyone know of a website who sells vitamins for GFCD kids at a reasonable price? I can't afford an arm and a leg for supplements. Just want things that are going to work for him and not cause a reaction. Thanks.

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Re: Sensory Integration Disorder? Please Help!
« Reply #51 on: February 06, 2007, 03:54:12 PM » by mamaoffour

Aussieinamerica: Thanks for the prayers!! Today was like "war war two" again. He is having a reaction to one of his supplements. No focus, no eye contact, and has been stimming all day long!! He has also been repeating everything all day long. He had made so much progress until the last two days. Be back...got to start dinner.

Misty

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Re: Sensory Integration Disorder? Please Help!
« Reply #52 on: February 06, 2007, 04:08:23 PM » by herbalmom

Quote from: mamaoffour on February 06, 2007, 03:42:47 PM

My children can't have anything synthetic or they get hyper & have mood swings so what I do is avoid ANYTHING that says flavors, even if it says "natural flavors". Just because the FDA says it's "natural" DOSEN'T mean that my children's bodies will accept it. Also fructose is often from corn so if corn is a problem you would want to avoid it & it is still a sugar. I don't know if maltodextrin is a form of gluten, I don't think so but it could be from wheat, but I DO know that it is a sugar- dextrose is sugar. Sugar in any form, even high carb from too much fruit causes my children problems. Food for thought. HTH Blessings ~herbalmom

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Re: Sensory Integration Disorder? Please Help!
« Reply #53 on: February 06, 2007, 04:33:06 PM » by abbilynn

Just a thought - at first we spent a ton of money on supplements and stuff. Some helped and some didn't. I would just start with the basics. The intestines of a child with SID (or most ASD) is terribly damaged. Therefore, they are not going to absorb most stuff. The foundation should be to start repairing the intestinal wall and balance of good/bad organisms and bacteria. We have had HUGE results with Primal Defense. The day after I started it my son had a normal bowel movement, which is truly amazing! Cheesy

If you start repairing the intestines, they will be more likely to benefit from other supplements, but take it slow and introduce them one at a time, maybe one every 4 weeks. I'm only saying this from experience and recommendations from our DAN and a nutritionist. But that doesn't mean it's always right. Wink

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Re: Sensory Integration Disorder? Please Help!
« Reply #54 on: February 06, 2007, 06:03:23 PM » by healthybratt

Quote from: abbilynn on February 06, 2007, 04:33:06 PM

The foundation should be to start repairing the intestinal wall and balance of good/bad organisms and bacteria.

For some more in depth info on this, see the following link.

I Think I Have Leaky Gut: What Now?

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Re: Sensory Integration Disorder? Please Help!
« Reply #55 on: February 07, 2007, 09:55:50 AM » by mamaoffour

Quote from: abbilynn on February 06, 2007, 04:33:06 PM

Abbilyn: Can you tell me where to get the Primal Defense at? I really would like to purchase some, as I found out that the probiotics I bought has millet and maltodextrin. I'm pretty sure my little one doesn't tolerate this at all. Thanks.

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"Train up a child in the way he should go: and when he is old, he will not depart from it(Prov. 22:6).

Re: Sensory Integration Disorder? Please Help!
« Reply #56 on: February 07, 2007, 09:59:10 AM » by mamaoffour

herbfever: Thanks for the info on Kirkmans; I came across the website and looked at their products. It looked like everything was pretty natural and not containing sugar. I will probably buy their children Multi-vitamin when I get a chance. Thanks everybody. This is going to be a long journey for us. He is sensitive to everything.

Misty

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"Train up a child in the way he should go: and when he is old, he will not depart from it(Prov. 22:6).

Re: Sensory Integration Disorder? Please Help!
« Reply #57 on: February 07, 2007, 10:08:28 AM » by dara

Here's one good sourse for Primal Defense- it's 'always' on sale here:

Still be careful to read ingredient lists- the kids version contains banana and milk

http://www.vitacost.com/productResults.aspx?Ntk=products&.y=5&ss=1&.x=8&Ntt=Primal%20Defense

« Last Edit: February 07, 2007, 10:11:02 AM by dara »
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Re: Sensory Integration Disorder? Please Help!
« Reply #58 on: February 23, 2007, 11:56:39 PM » by mamaoffour

Ok everyone. Just wanted to keep everyone updated on Noah's progress. I purchased some new vitamins for Noah(sugar free and additive free as well) and so far he is not near as hyper. We have had a rough 7 days since the whole family is sick with a bad cold!! Yuck!! Noah has been very very sensitive since he has been ill, but I know now after today, he will be much better tomorrow. He is slowly getting better. We have been using Primal Defense for about a week and a half and can see a difference in his bowels. At first, he had a rash and some runny stools, but I guess his body is used to it now. I wish I had this before we all came down with the cold!! Before I knew Noah had food allergies, he was drinking kefir milk every single day, and he never got sick!! I actually have made him some Kefir'd'uva and he really liked it. Now I think he may be sensitive to the grape juice, I really don't know though. I cut that out after he had runny stools. We will eventually get an allergy test done on him so I will know actually what he has responses to. For some reason I think his body doesn't break down sugar at all, even natural forms of sugar. If he has any kind of honey or molasses it's like it goes straight to his blood stream. I really need to look into this because he doesn't seem to process sugar at all. I wonder what enzyme or metabolic component the body uses to break down sugar? If Noah even eats a baked potato he will become extremely hyper 30 minutes later. I think that a baked potato is equvilant to 1/4 cup of sugar!! I forgot that the starch turns right into sugar!! Now we have to monitor his potatoes. Maybe we will start trying sweet pototoes?

Anyway, Noah seems to be getting much better these days. I wanted to let everyone know because everyone was so supportive and helpful when I posted my story. Here's is what we have been giving Noah. Maybe this will be helpful to someone else with a Sensory sensitive child:
Thanks for the help.

Natural Cellular Defense: This is for heavy metal detoxing. We will stop this after about 8 weeks and then test him to see if his metals are still high. We noticed a difference in Noah's hyperactivity the second day on this product and this was before we started the GFCD!! Expensive but worth it.

Magnesium/Calcium combination:This helps with nerves and has a general calming effect with Noah. Good results also.

Zinc: Normally children with sensory integration are usually defient in zinc. We give him 30mg of this a day. Just started this one today. Hopefully, this will help his immune fuction a little.

Primal Defense probiotic: Has only been on this a week, but so far looks to be helping his loose stools. In the future I'm sure this will help his immune system too.

Essential Fatty Acids: He takes a primrose and Fish oil combination. This is for optimal brain function. I can really see a difference with this product. He is able to focus a lot better and is calmer on this product.

Vitamin C: He has been taking about 2-3 capsules a day for immune fuction and detox symptoms from the Natural Cellular Defense. When he gets off the NCD we will drop it down to 1 a day.

Vitamin B Complex This has been very helpful with his mood swings!! I can't stress the importance of this vitamin. As soon as we started it we noticed a change in his sensory issues. Research shows that children with sensory issues benefit from B-12 because their nervous system is behind or damaged. All the B vitamins in this complex seem to be working in harmony with each other. Has proved to be very helpful with Noah's sensory issues and repetitive behaviors. Grin

If we miss a day on these, it really shows.

GABA: Gamma-Aminobutyric Acid is a neurotransmitter and is known as an inhibitory amino acid in that it fills brain receptor sites so that other messages can not be transmitted. It works with the B-Vitamins Niacinamede and Inositol. Since Noah obviously has problems with his Nervous System and nerve receptors, we hope this will help him block out some of the stimuli that he normally can't block out from his mind. As stated in my original post, Noah has difficulty tuning things out that normal people can just block out or tune out. We think this is one of the reasons behind his hyperactivity problems. This should have a calming effect on Noah. Just today Noah was reciting bits and peices of story books, the weather, and just anything his mind is thinking about all at the same time. It's really weird how he can be thinking about 6 or 7 things at once and then recite everything right back at you all at the same time. No wonder he has trouble concentrating!! His nerve receptors are constantly firing even when they shouldn't be. Ok, maybe I'm wrong about this, but it seems to really fit Noah's problems. I have been reading constantly about this. We just started this supplement today. So I will keep you posted on the results.

This is still not the end of my jouney, my son is so important to me and I will stop at nothing to get him better. Please if anyone who has been through this would like to respond, please feel free to drop some advice or let me know what you think on the supplements we are using. If someone knows of something else that might be better or cheaper, I'm all ears!! Thanks again for listening.

Misty

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"Train up a child in the way he should go: and when he is old, he will not depart from it(Prov. 22:6).

Re: Sensory Integration Disorder? Please Help!
« Reply #59 on: February 24, 2007, 12:59:14 AM » by Lavender~Rosemary

Wow! That sounds great! So glad to hear that you are seeing improvements. It is funny that you posted because just today I was wondering how you were doing.
Keep up the great work.
Stacy

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